To raise awareness and fund research for CMT6 in Webster, New York! Click image to register!
On Thursday April 21, 2016, over 160 Zach supporters gathered for the 1st Casino Night to benefit CMT6!
The Hereditary Neuropathy Foundation is proud to be included among leading rare disease groups, as we collectively aim to fill the research gaps to better understand how these rare diseases progress over time.
Kassandra generously shared the story of their friendship with us: I met Molly while living abroad in Tel Aviv, Israel. She just moved there and reached out to me to write for a foodie website I was running at the time.
The Hereditary Neuropathy Foundation (HNF) is proud to announce a new partnership with Acetylon Pharmaceuticals, Inc., a leader in the development of selective histone deacetylase (HDAC) inhibitors for enhanced therapeutic outcomes.
Our shared stories help show a connection between CMT and the symptoms we experience, such as hearing loss.
HNF gets answers to questions on what is genetic testing, cost, family history, what happens to the data.
HNF is proud to report that over $36,000 was raised for research for CMT2A at this annual event!
On October 23, 2015 the Victor New York Blue Devils Football boosters and coaching staff dedicated their first playoff game from their undefeated season to team manager Zach Houliares.
Optic neuropathy is one of the symptoms of a less common form of Charcot-Marie-Tooth disease known as CMT6.
On Saturday July 25, 2015, Debi and Tom Houliares hosted the first annual Chrome Diva’s Motorcycle Scavenger Hunt in Webster, New York to raise awareness and funds for CMT Type 6.
Hello! We have our tickets and hope this is a very successful event!
Many thanks to our Rochester Chrome Divas for all of their hard work on this benefit event!
Deb & Keith
Looking forward to it!
Thank you Kat for your support!