To raise awareness and fund research for CMT6 in Webster, New York! Click image to register!
As we start the new year energized and ready to continue our mission of bringing treatments and...
Battersby Lab Donor Story Fighter Moms Donate to Vital Research into Mitochondrial Diseases
Meet Bosco, Zach Houliares service dog. Learn more about how service dogs can help those living with CMT!
C12orf65 gene, a rare form of CMT also known as Leigh Syndrome is robbing young children of a normal life even beyond the classic CMT symptoms.
C12orf65 can present as two different types of diseases called CMT6 and Leigh’s Syndrome. Both diseases are caused by dysfunction of mitochondria, the energy factory of our cells, and are progressive and, many times, devastating.
On September 9th, The Rochester Chrome Divas hosted a Scavenger Hunt to raise money for CMT6 research.
Join us on September 9th in Victor, NY for a Scavenger Hunt to help raise funds for CMT 6 research.
Join HNF at the MightyMan Half Iron Distance in Fort Pond, Montauk, NY October 1st.
HNF cast off for our maiden voyage New York City sunset cruise to raise funds for CMT research.
Join this exclusive research study for people with CMT featuring the AlterG anti-gravity treadmill.
Hello! We have our tickets and hope this is a very successful event!
Many thanks to our Rochester Chrome Divas for all of their hard work on this benefit event!
Deb & Keith
Looking forward to it!
Thank you Kat for your support!