CATEGORIES: CMT Update

Patient-Centered Summit for CMT/HNPP: Cambridge, MA November 3, 2017

by | Nov 25, 2016 | 1 comment

HNF is excited to hold the 2nd Annual Patient-Centered Summit with a focus this year on CMT/HNPP  and Pain in Cambridge, MA! The Summit will be held on the campus of the Massachusetts Institute of Technology (MIT) in the Samberg Conference Center.

Registration opening soon. Click here for information more information.

Learn more on this topic

Related Blog Posts

Calling Everyone With CMT/IN

HNF has launched a new Patient-Reported Research Study to advance therapies for CMT and inherited neuropathies (IN) in an effort to collect comprehensive data for a better understanding of the disease.

Join the conversation

Leave a Comment

1 Comment

  1. Carol A Wilson

    Does anyone know the difference between CMT and HNPP. I have read that they come under the same umberella. I have HNPP and so do two of my sisters. We have a wide range of symptoms, with various disabilities. I need a walking stick to move about and most days I can’t walk more than a few metres. My elder sister, who was first diagnosed with HNPP, 20+ years ago, can walk around and goes on holiday two ot three times a year. I would be interested to find out about the difference and similarities in the two diseases.

    Thank you.
    Carol.

    Reply

Submit a Comment

Your email address will not be published. Required fields are marked *

Newsletter

Join for notifications on events, campaigns, & news