On Friday, November 3, 2017, in Cambridge, MA, the Hereditary Neuropathy Foundation (HNF) will host its Annual Patient-Centered Summit for CMT/HNPP and the focus will be on pain.
HNF recognizes the importance of meaningful participation of patients and caregivers to engage research related to pain. The goal will be to come to an understanding of pain in the CMT/HNPP Community, including the impact on quality of life. Participation in the HNF Patient-Centered CMT/HNPP Pain Summit will help patients to better describe and identify their pain and therapeutic approaches.
But, what do we mean by the term “Patient-Centered”?
“Patient-Centered” refers to the meaningful involvement of patients, caregivers, clinicians, and other healthcare stakeholders TOGETHER in a summit format.
This includes topic selection, panelist participation, audience engagement during Q&A sessions, and all the wonderful conversations in between speaker sessions and at our evening reception!
We have an exciting agenda which you don’t want to miss! Below are some of the topics that will be addressed at the Patient-Centered CMT/HNPP Pain Summit:
- Chronic pain and the importance of social networks.
- Scientific overview of types of pain and pain mechanisms involved.
- Assessment of current CMT/HNPP pain management options and discussion of available pain therapies for treatment and coping.
- Partnering with your HCPs’ to ask for help with pain management.
- Communicating with loved ones about your pain.
Be sure to check out the innovative and progressive topics that will be covered.
HNF believes that bringing all groups TOGETHER can influence research to be more patient centered, useful, trustworthy, and ultimately lead to lifestyle guidelines and treatments for CMT/HNPP, making a difference in your life TODAY.
This Summit is BY patients and FOR patients. We NEED patients to participate and make this Summit a…
HNF is seeking sponsors for our Summit and we are offering financial assistance to help patients and caregivers attend.