“Is this symptom related to CMT?”

This is a frequent question asked by many individuals living with CMT and their loved ones. Most of us are familiar with the most common symptoms of CMT, such as foot drop & hand weakness. However, many less-recognized symptoms can be just as disruptive to our lives but have not yet been studied or linked to CMT; the rarer the symptom, the more uncertain and isolated we may feel.

What participants are saying: 

This webinar was fantastic. I have felt alone in this land of CMT. I am going to look into testing. I am grateful. – Judith 

Thank you so much…I am looking forward to hearing back from you and appreciate such a wonderful night full of information!!! – Staci

Just wanna say thank you all for doing this for us! Appreciate this! – Traci

I LOVE these zoom CMT meetings and I thank you for all you do for us! – Leanne

Great job on the webinar last night! Very informative, I am sure it was valuable for all participants! – Peter

How do we know if our symptoms are CMT-related, and how can we drive research to better answer this question?

Watch HNF’s “Making Sense & Science of CMT Symptoms” webinar to find how to help further research for Charcot-Marie-Tooth.

Learn more on this topic

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Global Registry For Inherited Neuropathies: Your Questions Answered

Global Registry For Inherited Neuropathies: Your Questions Answered

Why are we asking you to join our registry? It’s simple. Without you, researchers won’t have the essential patient information to develop the drugs, gene therapy, and clinical trials for Charcot-Marie-Tooth and other inherited neuropathies.
This is why the Hereditary Neuropathy Foundation (HNF) created the Global Registry for Inherited Neuropathies (GRIN). The registry collects the historical, clinical, and genetic information on patients diagnosed with the various forms of inherited neuropathies to help advance therapy development for these debilitating disorders. We understand there may be some hesitation joining our registry. To help mitigate any concerns, we’ve have the answers to your most common questions.

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