CATEGORIES: CMT-Connect Webinars | Webinars - Adaptive Driving

Adaptive Driving for CMT

by Courtney | Apr 7, 2022 | 0 comments

CMT THRIVE Webinar

Presented by: Presented by: Susie Touchinsky, OTR/L, SCDCM, CDRS

Join us for a crash course on adaptive driving from evaluations, equipment, and certification!

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The Key Role CMT Patients Play in Research

by Courtney | Sep 16, 2022 | GRIN Patient Registry, Living with CMT, Research and Critical Trials, Webinars - Research and Clinical Trials | 0 Comments

Without your participation, researchers won’t have the essential patient information to develop drugs, gene therapies, and clinical trials for Charcot-Marie-Tooth and other Inherited Neuropathies. In addition, as GRIN grows, we gain greater insights from you as patients to help accelerate therapies for Charcot-Marie-Tooth (CMT) and Inherited Neuropathies.

Applying for Social Security Disability 101

by Courtney | Sep 13, 2022 | Legal Rights and Benefits, Webinars - Legal Rights and Benefits | 1 Comment

The Social Security Administration (SSA) doesn’t make it easy for those with CMT to get the Social Security Disability Benefits they deserve.

What is SORD Deficiency?

by Courtney | Sep 11, 2022 | Research and Critical Trials, Webinars - Research and Clinical Trials | 0 Comments

Could you be 1 of the estimated 3300 patients in the US with the gene causing SORD Deficiency?

Real Talk with Joey Nicoletti

by Courtney | Sep 10, 2022 | CMT-Connect Webinars, Emotional and Mental Health, Webinars- Emotional and Mental Health | 0 Comments

Joey’s family has a history of Charcot-Marie-Tooth, and he decided to get tested at the end of 2019. He learned at the age of 23 that he had CMT-1B and needed to adapt his way of life so that he could continue performing.

How to get genetic Testing: The CMT Genie

by Courtney | Sep 10, 2022 | CMT-Connect, CMT-Connect Webinars, Featured, Genetic Testing, The CMT Genie, Webinars - Genetic Testing | 0 Comments

Trying to get a genetic confirmation of CMT can be overwhelming, and you might not have access to healthcare providers who are familiar with all the choices out there.

The Future of CMT Research

by Courtney | Aug 13, 2022 | Research and Critical Trials, TRIAD, Webinars - Research and Clinical Trials | 0 Comments

Hear from Allison Moore, Founder/CEO of the Hereditary Neuropathy Foundation about the past, present and future or research.

Setting Healthy Boundaries

by Courtney | Jul 12, 2022 | Emotional and Mental Health, Webinars- Emotional and Mental Health | 0 Comments

Setting healthy boundaries is part of self-care and self-respect. It is being assertive without the need to be aggressive. Healthy boundaries can help us define our uniqueness and our core. Boundaries are not just about getting what we want. It’s about getting to live our lives on our own terms.

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Adaptive Driving for CMT

CMT THRIVE Webinar

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