Join Team CMT
Join the movement to make a difference for those living with Charcot-MarieTooth (CMT).
By joining Team CMT and participating in an event you will help us fund research and programs for Charcot-Marie-Tooth. Examples of past event: running event, poker night, paint night, Card party, golf outing, letter writing campaign and more.
3 Ways to Join
1. Participate in an athletic event in your Community
Upcoming Events
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Past Events
AANEM conference
Hereditary Neuropathy Foundation sponsored a course on CMT as part of the annual meeting of the American Association of Neuromuscular and Electrodiagnostic Medicine (AANEM).
September is CMT Awareness Month
CMT Awareness Month activities
3. Host "Your Own" Event
We can help! The HNF Team will support your event with marketing, invitation designing, planning and more! Choose from one of our past events below and email [email protected] for details, or submit your own!
Past events:
- Spin for a Cure
- Poker Night
- Set Sail for CMT
- Card Party
- Golf Outing
- Go-kart Party
- Cocktail Party
- Bake Sale
- Clay shoot
- Paint Night
- Gala & Auction
Submit your own Event!
Special Events
HNF Charity Partner: TD Five Boro Bike Tour May 4, 2014
HNF is thrilled to have been chosen for the 4rd year as a Charity Partner for the TD Bank Five Boro Bike Tour
TEAM CMT & CHRIS WODKE
Boasting a growing membership, Team CMT and the Hereditary Neuropathy Foundation (HNF) are celebrating a successful first year of collaboration.
Personal Profile: Estela Lugo, Designing Décor
As a little girl, Estela Lugo now 32, always knew she would do “something with art” when she grew up. “I was drawing, always drawing,” she remembers.
Running for Three Generations with CMT
These days, inspired by his love of family he runs on behalf of three generations of women with Charcot-Marie-Tooth disease
Joe Torello, Music Man
While running the Philly Half-Marathon, Joe will be raising funds for the Hereditary Neuropathy Foundation (HNF). So far, he has raised $ 1105.00 through private donations and hopes to gain corporate sponsors as well.
Camp CMT: Great Opportunity for Children with CMT!
Arrangements are being made to allow HNF to invite families impacted by Charcot-Marie-Tooth for a weekend, in 2013, to Camp Twin Lakes.
Spin / Yoga for a Cure: Thursday September 27th Hot Ryde Roslyn, New York
The Hereditary Neuropathy Foundation (HNF) “Spin/Yoga for a Cure” will be held Thursday, September 27, 2012.
Team CMT: Monthly Family 5K Fun Run
Team CMT – Richmond’s Monthly Group Fun Run will met at 8am, Saturday, July 7 at Winterpock Elementary School, 9000 Elementary Way Loop, Chesterfield, VA.
Personal Profile: Alyson O’Connor, Fitness Instructor & Volunteer Fire Fighter
A volunteer fire fighter for eight years, Alyson has managed to stay active, in spite of her CMT symptoms.
Fundraiser for CMT Awareness a Huge Success
Almost 10 now, Erin was diagnosed Charcot-Marie-Tooth (CMT) four years ago. Over those four years there have been numerous trips to Boston for treatment and surgery.




