Meet Elizabeth Stenz, Team CMT Member

by | Aug 19, 2014 | 0 comments

Stenz 1Elizabeth lives on the east side of Milwaukee, Wisconsin, and is currently working at a non-profit organization. She enjoys exploring Milwaukee, running by the lakefront, and spending time outside.

Her sister was diagnosed with CMT when she was
14, and since then her and many family members have become very familiar with the disease and have worked to raise awareness. She found out about Team CMT through her sister. What drew her to Team CMT was the fact that a team could be created along with a fundraising page, a great way to unite the family. “I decided this would be an incredible opportunity and would really motivate me to commit to running a half marathon.” Elizabeth accomplished that feat on June 14th at the Rock n’ Sole Marathon in Milwaukee.

CMT has made her realize how a physical disability can affect so many people, not just the person with
 the disability. It has also showed her it cannot strip anyone of motivation, optimism, and positivity. Elizabeth is in awe of her sister and her can-do attitude despite the struggles that CMT brings to her daily life, and this motivates her participation with Team CMT.

One of Elizabeth’s favorite quotes is “Be who you are and say what you feel, because those who mind don’t matter, and those who matter don’t mind.” – Bernard Baruch.

Learn more on this topic

Related Blog Posts

September is CMT Awareness Month

CMT awareness month is an entire month dedicated to building awareness, raising funds and finding a cure. The Hereditary Neuropathy Foundation (HNF) has committed to spend 30 days in September hosting local and national events, launching fundraisers, and spreading the word about the effects of Charcot-Marie-Tooth disease

Personal Stories: Triathlete, Trainer with Charcot-Marie-Tooth

Personal Stories: Triathlete, Trainer with Charcot-Marie-Tooth

In spite of high foot arches and trouble with balance, Joy von Werder of Winter Springs, FL has always been a runner and cyclist. She was also eager to participate in a triathlon. “The training and racing aspects really appeal to me,” she explained. There was one huge problem though. Joy didn’t know how to swim. “So there I was, 39 years old, taking swimming lessons from the boy who gave my little kids lessons,” Joy laughs, but her voice changes quickly as she describes her first race.

Member Alyson O’Connor Won’t Let Her CMT Stop Her!

Allyson O’Connor won’t let CMT get her down. She was unofficially diagnosed at the age of 10. Her Dad had the same symptoms, but at the time genetic tests were not available. Her diagnosis was based on an EMG. After having her two children, now age 8 and 6, she decided it was important to determine if she definitely had CMT.

Join the conversation

Leave a Comment

0 Comments

Submit a Comment

Your email address will not be published. Required fields are marked *

Newsletter

Join for notifications on events, campaigns, & news