Grab Your Shoes and Spin CRANK Style NYC!

by | Aug 19, 2014 | 0 comments

Dust off those spin shoes and come out to CRANK NYC (Upper East Side – 1658 Third Avenue) Saturday, September 27, 2014 from 1pm to 3pm and Spin-For-A- Cure! Join us as we have fun filled hours of energetic music and fun all for a great cause! 
All proceeds go to research for Charcot-Marie-Tooth. Make sure you check out the raffles for a chance to win some great items. Immediately following we will mingle for food and drinks at Parlor Steakhouse just two short blocks away from CRANK. Don’t live in the New York area? Host a spin in your community to spread awareness for CMT. We will give you all the tools you need. Contact [email protected] for details!Visit http://hnf.donorpages.com/SpinNYC/ to register!

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HNFpharnext recently entered into a partnership with the French biopharmaceutical company, Pharnext, to help raise awareness of Charcot-Marie-Tooth (CMT) disease and support the CMT patient community through several initiatives. Building awareness is key! Pharnext’s support will assist HNF in distributing HNF’s CMT Update quarterly newsletter, enhancing the Global Registry for Inherited Neuropathies (GRIN), setting up activities for CMT September Awareness Month in the US and strengthening the CMT Inspire Community.

In Memoriam

The HNF family has lost two great people this summer: Franklin G. Downing Sr. (father of board member Matthew Downing) and George G. Gatta (father of board member Kathleen Zappola).

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