Join us on Saturday, April 6th at 7:00pm at CoolMess Roslyn, New York. The evening will be filled with dinner, drinks, music and fun activities. Take a chance at the blackjack, poker or roulette table to win great prizes!
All proceeds will go towards the Therapeutic Research in Accelerated Discovery (TRIAD) program, a collaborative effort with academia, government and industry, to develop treatments for Charcot-Marie-Tooth (CMT).
I was diagnosed with CMT type 1a in August of 2010. I was relieved to put a name to symptoms I’ve had my whole life.
Five-year-old Aiden Kelly was diagnosed with Charcot-Marie-Tooth Disease (CMT) last April, but for the Wellesley boy, the impact of this rare disease has only revealed itself gradually.
HNF is thrilled to have been chosen for the 4rd year as a Charity Partner for the TD Bank Five Boro Bike Tour
Boasting a growing membership, Team CMT and the Hereditary Neuropathy Foundation (HNF) are celebrating a successful first year of collaboration.
These days, inspired by his love of family he runs on behalf of three generations of women with Charcot-Marie-Tooth disease
While running the Philly Half-Marathon, Joe will be raising funds for the Hereditary Neuropathy Foundation (HNF). So far, he has raised $ 1105.00 through private donations and hopes to gain corporate sponsors as well.
Team CMT – Richmond’s Monthly Group Fun Run will met at 8am, Saturday, July 7 at Winterpock Elementary School, 9000 Elementary Way Loop, Chesterfield, VA.
A volunteer fire fighter for eight years, Alyson has managed to stay active, in spite of her CMT symptoms.
When Chris Wodke received her acceptance letter to run in the 2012 Boston Marathon Mobility Impaired Division, she was overwhelmed. “I wanted to cry and shout at the same time. I never thought I would be running Boston. It is an honor and I am humbled. It is the achievement,” she explains, “of a dream that seemed out of reach.”
“An awesome event” is how members of Team CMT described the 2012 TD Bank NY Five Boro Bike Tour, held on Sunday, May 6th
0 Comments