Arclight Presents…BERNADETTE (NYR) September 17, 2013

by | Sep 12, 2013 | 0 comments

Cast: Bernadette Scarduzio

Bernadette Scarduzio was born with the most common inherited disease that no one has ever heard of: Charcot Marie Tooth (CMT) syndrome. CMT is the number one hereditary neuropathy in the world, affecting 1 in 2,500 people or nearly 2.6 million worldwide. It is a degenerative nerve and muscle disorder which leads the body to deteriorate over time. Sometimes the progression is slow. Sometimes it is rapid. In some cases, it is fatal. There is no cure. It is passed from parent to child and, too often, it is perceived as an embarrassing family secret, as it was in Bernadette’s family. Official Selection of the NYC Independent Film Festival 2012. Running Time: 76 min.

Tuesday September 17 , 2013 @ 7:30pm           bernadette-keyart-LR[1]
Arclight Hollywood
6360 W. Sunset Blvd., Los Angeles, CA 90028

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AANEM conference

Hereditary Neuropathy Foundation sponsored a course on CMT as part of the annual meeting of the American Association of Neuromuscular and Electrodiagnostic Medicine (AANEM).

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