CATEGORIES: PFDD Meeting 28SEP2018

PFDD Meeting Sessions

by Courtney | Dec 19, 2018 | 0 comments

Welcome and Opening Remarks

Overview: What is CMT? – Michael Shy, MD

Overview: What is CMT? – Dr. Stephan Züchner, MD, PhD

Goals & Objectives for the Meeting, Participant Polling of Demographic Questions

Session 1: Symptoms and Daily Challenges for Pediatrics & Young Adults

Session 2: Symptoms and Daily Challenges for Adults Living with CMT

Session 3: Current and Future Approaches to Treatments

Pipeline Overview Therapies in Development – Florian Thomas, MD, MA, PhD, MS

Summary from FDA & Closing Remarks

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PFDD Meeting, September 28, 2018

by Courtney | Dec 19, 2020 | PFDD Meeting 28SEP2018 | 0 Comments

On Friday, September 28, 2018 HNF hosted an Externally-led Patient Focused Drug Development (PFDD) Meeting. In attendance were patients, caregivers, Government Officials, Healthcare Providers, Industry Representatives, and Payors.

HNF’s Landmark Externally-Led Patient-Focused Drug Development Meeting

by Courtney | Apr 13, 2018 | PFDD Meeting 28SEP2018 | 0 Comments

HNF will be holding a landmark externally-led Patient-Focused Drug Development Meeting for CMT and INs in Washington, D.C. on Friday, September 28, 2018.

Landmark “Voice of the Patient” PFDD CMT Meeting Needs All Hands on Deck!

by Courtney | Jan 29, 2018 | PFDD Meeting 28SEP2018 | 1 Comment

Help support this ground-breaking PFDD CMT Meeting being held on September 28, 2018 in Washington, D.C.

Hope on the Horizon: CMT & FDA Patient-Focused Drug Development Meeting for Charcot-Marie-Tooth to be Held in 2018

by Allison Moore | Dec 4, 2017 | PFDD Meeting 28SEP2018 | 2 Comments

HNF will be holding a landmark externally-led Patient-Focused Drug Development (PFDD) Meeting CMT & INs in Washington, D.C. on September 28, 2018. The meeting will be held in conjunction with September National CMT Awareness Month.

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PFDD Meeting Sessions

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Related Blog Posts

PFDD Meeting, September 28, 2018

HNF’s Landmark Externally-Led Patient-Focused Drug Development Meeting

Landmark “Voice of the Patient” PFDD CMT Meeting Needs All Hands on Deck!

Hope on the Horizon: CMT & FDA Patient-Focused Drug Development Meeting for Charcot-Marie-Tooth to be Held in 2018

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