To raise awareness and fund research for CMT6 in Webster, New York! Click image to register!
Hereditary Neuropathy Foundation Partners with InformedDNA® on CMT Genie Project
Mitochondria are the powerhouses of our cells. Think of them as our body’s batteries. Mitochondrial disease causes these batteries to run low.
This research will potentially show a method that may be quicker and better at identifying...
We have two choices in this world. We can sit back and do nothing, allowing this disease to happen, or we can go out and fight to make a difference.
As we start the new year energized and ready to continue our mission of bringing treatments and...
Battersby Lab Donor Story Fighter Moms Donate to Vital Research into Mitochondrial Diseases
Meet Bosco, Zach Houliares service dog. Learn more about how service dogs can help those living with CMT!
C12orf65 gene, a rare form of CMT also known as Leigh Syndrome is robbing young children of a normal life even beyond the classic CMT symptoms.
C12orf65 can present as two different types of diseases called CMT6 and Leigh’s Syndrome. Both diseases are caused by dysfunction of mitochondria, the energy factory of our cells, and are progressive and, many times, devastating.
On September 9th, The Rochester Chrome Divas hosted a Scavenger Hunt to raise money for CMT6 research.
Hello! We have our tickets and hope this is a very successful event!
Many thanks to our Rochester Chrome Divas for all of their hard work on this benefit event!
Deb & Keith
Looking forward to it!
Thank you Kat for your support!