On March 19th, at the MDA Clinical and Scientific Conference in Dallas, TX, Dr. Cornett will present exciting findings from the wearable sensor study conducted in collaboration with HNF’s partner, BioSensics. This innovative research highlights the potential of wearable technology to transform how disease progression and therapy effectiveness are measured for individuals with CMT.
Looking for new patients to participate in the BioSensics Wearable Study. Join us in Nashville, TN, April 24-26th.
A long-time member of the CMT community, HNF enlisted Estela to become a moderator for our CMT-Connect™ workshops. She has generously committed her time to help lead and teach other CMT patients in her community.
HNF welcomes CMT community member Kristin Gelzinis, who will participate in the much anticipated panel discussion on exercise and the CMT patient.
HNF has asked Jenny to join us at the Patient-Centered Charcot-Marie-Tooth Summit to participate as a panelist in “Personalized Exercise Prescription.”
The Hereditary Neuropathy Foundation is proud and privileged to introduce Stefanie Sacks, our keynote speaker at the first Patient-Centered Charcot-Marie-Tooth Summit on October 6, 2016 in New York City.
The Hereditary Neuropathy Foundation’s Team CMT Founder and Manager Chris Wodke is changing the face of Charcot-Marie-Tooth one mile at a time. Chris is an accomplished triathlete, marathon runner, and cyclist.
HNF is honored to have Gary Barg, noted speaker, author, and publisher on caregiving issues since 1995, speak at the upcoming Patient-Centered Charcot-Marie-Tooth Summit on October 6, 2016.
Travel Scholarships up to $1000 USD available for CMT patients/caregivers to attend HNF’s 2016 Patient-Centered Charcot-Marie-Tooth Summit October 6, 2016
The goal of the Patient-Centered Charcot-Marie-Tooth Summit will be to expand the role of patients, caregivers and other stakeholders/
HNF is planning the first ever Patient-Centered Charcot-Marie-Tooth Summit taking place on October 6, 2016 at the 3 West Club in New York City.
Q&A With Summit Attendee Jim Matthews
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