Participate or Host an event
It’s a unique opportunity for our community to come together and celebrate and raise awareness and funds for CMT research. The HNF staff will assist you in your efforts.
Learn about our events and co-host with us in your area!
We can help! The HNF Team will support your event with marketing, invitation designing, planning and more!
Some past events: Spin for a Cure, Poker Night, Set Sail for CMT, Card Party, Golf Outing, Go-kart Party, Cocktail Party, Bake Sale, Clay shoot, Paint Night, Gala & Auction and more.
Upcoming Events
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Past Events
Personal Profile: Estela Lugo, Designing Décor
As a little girl, Estela Lugo now 32, always knew she would do “something with art” when she grew up. “I was drawing, always drawing,” she remembers.
Camp CMT: Great Opportunity for Children with CMT!
Arrangements are being made to allow HNF to invite families impacted by Charcot-Marie-Tooth for a weekend, in 2013, to Camp Twin Lakes.
Spin / Yoga for a Cure: Thursday September 27th Hot Ryde Roslyn, New York
The Hereditary Neuropathy Foundation (HNF) “Spin/Yoga for a Cure” will be held Thursday, September 27, 2012.
Team CMT: Monthly Family 5K Fun Run
Team CMT – Richmond’s Monthly Group Fun Run will met at 8am, Saturday, July 7 at Winterpock Elementary School, 9000 Elementary Way Loop, Chesterfield, VA.
Fundraiser for CMT Awareness a Huge Success
Almost 10 now, Erin was diagnosed Charcot-Marie-Tooth (CMT) four years ago. Over those four years there have been numerous trips to Boston for treatment and surgery.
Special Events
Posts related to Team CMT Members
From our Blog
Joe Torello, Music Man
While running the Philly Half-Marathon, Joe will be raising funds for the Hereditary Neuropathy Foundation (HNF). So far, he has raised $ 1105.00 through private donations and hopes to gain corporate sponsors as well.
Team CMT: Monthly Family 5K Fun Run
Team CMT – Richmond’s Monthly Group Fun Run will met at 8am, Saturday, July 7 at Winterpock Elementary School, 9000 Elementary Way Loop, Chesterfield, VA.
Personal Profile: Alyson O’Connor, Fitness Instructor & Volunteer Fire Fighter
A volunteer fire fighter for eight years, Alyson has managed to stay active, in spite of her CMT symptoms.
Team CMT Leader to Run Boston Marathon
When Chris Wodke received her acceptance letter to run in the 2012 Boston Marathon Mobility Impaired Division, she was overwhelmed. “I wanted to cry and shout at the same time. I never thought I would be running Boston. It is an honor and I am humbled. It is the achievement,” she explains, “of a dream that seemed out of reach.”
A Great Ride at Bike New York
“An awesome event” is how members of Team CMT described the 2012 TD Bank NY Five Boro Bike Tour, held on Sunday, May 6th
Team CMT leader finishes second at Boston Marathon
Congratulations to Chris Wodke, manager of Team CMT, who placed second in the Mobility Impaired Division of the 2012 Boston Marathon on April 16!
Di Billick Runs 10k for Team CMT
Di also did something special for Team CMT. “I took my body to the absolute limit yesterday, Sunday, April 15th, in honor of Chris Wodke’s Boston Marathon run which took place the next day. I walked (no jogging or running) in one direction and had my husband pick me up when I couldn’t go any further.”
Coaching Athletes with Charcot-Marie-Tooth
Morgan Johnson doesn’t have Charcot-Marie-Tooth, but she is quickly learning everything she can about it.
April 16, 2012: Team CMT Leader to Run Boston Marathon
As manager of Team CMT and in partnership with The Hereditary Neuropathy Foundation, Chris intends to use this opportunity to raise awareness about CMT on a grander scale.
Personal Profile: Di Billick–Actress, Model, Inspiration
“I call Charcot-Marie-Tooth a blind disease because you can’t see it. People say I look fine and can’t understand that I have a problem.