Participate or Host an event
It’s a unique opportunity for our community to come together and celebrate and raise awareness and funds for CMT research. The HNF staff will assist you in your efforts.
Learn about our events and co-host with us in your area!
We can help! The HNF Team will support your event with marketing, invitation designing, planning and more!
Some past events: Spin for a Cure, Poker Night, Set Sail for CMT, Card Party, Golf Outing, Go-kart Party, Cocktail Party, Bake Sale, Clay shoot, Paint Night, Gala & Auction and more.
Upcoming Events
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Past Events
Make Ahead Mashed Potatoes
Author: A Passionate Plate Serves: 10-12
Ingredients
5 lbs. russet style potatoes, peeled and cut into 2″ chunks
8 oz. cream cheese, softened
1 cup sour cream
salt & pepper (white or black) to taste
4 Tbsp. butter
Turkey Chowder
cups each diced carrot, celery, onion and potato
3 Tbsp. olive oil
¼ cup flour
2 quarts chicken stock
1 lb. bag frozen corn
4 cups cooked turkey, diced
3 Tbsp. soy sauce
3 cups shredded cheddar cheese
1 can evaporated skim milk
1 tsp. crushed red pepper
2 Tbsp. fresh thyme, chopped
Holiday Cranberry Sauce
Author: A Passionate Plate
Serves: 7 half pint jars
SUPPLIES:
7 – ½ pint canning jars, lids and bands
Canning water bath pot, with rack, filled with 5 inches of water
Pumpkin Marble Cheesecake
Author: A Passionate Plate – from Ray’s Boathouse Seafood Secrets of the Northwest cookbook
Serves: 12
You will need a 9″ springform pan, foil and a large roasting or baking pan for this recipe. The recipe is not hard to make, but cooking time is nearly 2 hours, so be sure allow plenty of time in the kitchen.
Ingredients
Bernadette Released
On Tuesday, September 17th 2013, the world changed for the better – just a little bit. It was the day that Bernadette, the first full-length documentary on Charcot Marie Tooth disease, was released. Not only that, but it kicked of with a very special premiere at the ArcLight Cinemas Theatre in Hollywood.
Special Events
Posts related to Team CMT Members
From our Blog
Calling All Team CMT Members!
Join Team CMT and be part of an international effort to change the future for those living with CMT!
Zumbathon Brigantine, New Jersey: June 10, 2017
Zumbathon and Community Day featuring Marisela Zumba Chic
Set Sail For CMT: Saturday June 17, 2017
On June 17, 2017 in New York City, HNF will be kicking off our inaugural Manhattan sunset cruise for a night filled with food, drinks, music and exclusive auction items.
Summit Panelist Spotlight: Team CMT Founder Chris Wodke
The Hereditary Neuropathy Foundation’s Team CMT Founder and Manager Chris Wodke is changing the face of Charcot-Marie-Tooth one mile at a time. Chris is an accomplished triathlete, marathon runner, and cyclist.
Meet Molly: A True CMT Warrior
Kassandra generously shared the story of their friendship with us: I met Molly while living abroad in Tel Aviv, Israel. She just moved there and reached out to me to write for a foodie website I was running at the time.
Big Island Circumnavigation For Charcot-Marie-Tooth Awareness
Jennifer Decker has Charcot-Marie-Tooth and is set to embark on the first Big Island Circumnavigation.She won’t let CMT stop her for her dreams.
Ride For Charcot-Marie-Tooth Awareness & Research: 2016 TD Bank Five Boro Bike Tour
The Hereditary Neuropathy Foundation (HNF) is thrilled to participate as a Charity Partner for the 2016 TD Bank Five Boro Bike Tour for the fifth year in a row. This is an extraordinary event where participants bike through all five New York boroughs to help increase awareness and raise dollars to fund Charcot-Marie-Tooth (CMT) research.
Champions For Charity: Helping Those Living With Charcot-Marie-Tooth
What if every purchase you make this holiday season could earn dollars for Charcot‐Marie‐Tooth research? This holiday season, The Hereditary Neuropathy Foundation is participating in the Americana Manhasset Champions for Charity®. Come shop at the famous “Miracle...
Team CMT: Join The Movement & Make A Difference!
The holiday season is a great opportunity to make a difference for those living with Charcot-Marie-Tooth by joining the Hereditary Neuropathy Foundation Team CMT. Team CMT is a grassroots community fundraising program with 160 members in 32 states and 6 countries. We...
Thursday, December 3 – Sunday, December 6: Champions for Charity Americana Manhasset, New York
Holiday Shopping Benefit – Shop Till You Drop Hereditary Neuropathy Foundation is participating in the Americana Manhasset’s Champions for Charity®. From Thursday, December 3 through Sunday, December 6, over 70 participating Americana Manhasset and Wheatley Plaza...