CATEGORIES: Bike New York | Team CMT Members

Sunday May 1, 2016: 2016 TD Bank Five Boro Bike Tour

by | Jan 28, 2015 | 0 comments

HNF is thrilled to have been chosen for the fifth year as a Charity Partner for the 2016 TD Bank Five Boro Bike Tour.  This means more participants riding to increase awareness of Charcot-Marie-Tooth, and thousands more dollars raised to fund research into treatments and a cure.  Click on the button below to register to ride or to sponsor a rider.

You won’t want to miss this!  The only way to be a part of the 2015 TD Five Boro Bike Tour is to ride with a Charity Partner like the Hereditary Neuropathy Foundation, so dust off that Schwinn and meet us in the Big Apple! Click here to register!  Question email [email protected]

 

 

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Personal Stories: Triathlete, Trainer with Charcot-Marie-Tooth

Personal Stories: Triathlete, Trainer with Charcot-Marie-Tooth

by | Jun 19, 2014 | , | 0 Comments

In spite of high foot arches and trouble with balance, Joy von Werder of Winter Springs, FL has always been a runner and cyclist. She was also eager to participate in a triathlon. “The training and racing aspects really appeal to me,” she explained. There was one huge problem though. Joy didn’t know how to swim. “So there I was, 39 years old, taking swimming lessons from the boy who gave my little kids lessons,” Joy laughs, but her voice changes quickly as she describes her first race.

Member Alyson O’Connor Won’t Let Her CMT Stop Her!

by | May 21, 2014 | | 1 Comment

Allyson O’Connor won’t let CMT get her down. She was unofficially diagnosed at the age of 10. Her Dad had the same symptoms, but at the time genetic tests were not available. Her diagnosis was based on an EMG. After having her two children, now age 8 and 6, she decided it was important to determine if she definitely had CMT.

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