HNF is excited to announce the addition of four new board members to our team! They come to us with a wealth of knowledge and impressive backgrounds. We are excited to have them on board to further HNF’s mission to increase awareness of Charcot-Marie-Tooth (CMT) and Inherited Neuropathies, support patients and families with critical information to improve quality of life, and fund research that will lead to treatments and cures.
Each of these individuals is touched by CMT on a personal level and is looking forward to assisting in HNF’s efforts toward making a difference.
Gretchen worked at the Federal Reserve Banks of New York and Chicago for just over 17 years (10 years in NY and 7 in Chicago) in the Bank Supervision Group, until she decided to stay home with her three children in late 2015. Her specialties included consumer protection and capital risk management.
She managed several teams of examiners, including a large bank supervision team in Chicago, which was responsible for oversight of the most complex bank holding companies in the district. She has a B.A. in Spanish from Washington University in St. Louis and an MBA from NYU. Gretchen grew up quietly managing her CMT, and, now, two of her children have it. She plans to be an active advocate and part of the progress that HNF has been facilitating. She believes there can be a cure and thinks that the Chicago area is ripe for more involvement. She hopes to increase awareness and spearhead fundraising in the Chicago area!
Brooke is the proud mother of a smart, articulate and engaging third-grade daughter dealing with the challenges of CMT1A. Brooke has dedicated her life to finding the best care for her daughter and husband, and has been the primary medical advocate for the family through several surgeries. Brooke sought out HNF five years ago as a way to be better prepared to deal with the challenges her daughter would face. Brooke is committed to finding a cure for all children, and hopes to share her knowledge about her experiences and any effective treatments with others.
Brooke earned a Bachelor of Science in Civil/Environmental Engineering from the University of Notre Dame, a Master of Engineering Management at Northwestern University, and a Master of Business Administration from the Kellogg School of Management at Northwestern University.
Deborah Newcomb recently retired from a successful career as a portfolio manager in New York. Her career included several small boutique firms on Wall Street, followed by ten years at Scudder Stevens & Clark, and 30-plus years as a Managing Director at US Trust/ Bank of America. Deborah was born and raised in New England, and is a graduate of the University of Vermont. She currently lives on the Upper West Side with her husband, Jonathan. They raised two sons who went to school in New York and both now reside and work in the City. Deborah has been involved in a number of community activities, and was an active member of the CitiKids board for a number of years. She was a member of several residential boards and President of the Board in the last co-op in which she lived. She continues to raise funds for several local libraries.
Deborah has been involved in the Hereditary Neuropathy Foundation for the past two years, and was recently asked to join the board. Deborah’s personal interest in the Hereditary Neuropathy Foundation stems from her many years of dealing with peripheral neuropathy.
Kara most recently spent 7 years as a Vice President for Barclays Investment Bank in New York in their internal audit function specializing in Finance, Compliance, and Financial Crime, as well as implementation of global strategic change initiatives. Prior to Barclays, she worked for 6 years as a Manager with KPMG, LLP focused on financial statement audits for banks and other financial institutions in Chicago and New York. Kara is a Certified Public Accountant (CPA) and earned her Bachelor of Science in Accountancy at the University of Illinois.
Kara became involved with HNF after moving to New York in 2010. She is dedicated to raising awareness and supporting scientific research to find effective treatments and improve the lives of her family members and others impacted by CMT. Kara has recently relocated to Los Angeles where she is excited to raise CMT awareness and continue to expand the HNF network and support for our mission to the west coast.