proceeds are going to HNF. Click here to buy Joe’s album.
in The Music Man at Walnut St. Theatre in Philadelphia (second in from right)
The clinical Global Registry for Inherited Neuropathy (GRIN) and the Rare Disease Clinical Research Network (RDCRN) contact registry are very different types of databases.
On Wednesday, January 29th, jewelry designer jaKe & anna will be sponsoring the NYC premiere of BERNADETTE at the old time soho Angelika Film Center in Manhattan. 50% of sales from this viewing will go to the Hereditary Neuropathy Foundation (HNF).
The Hereditary Neuropathy Foundation (HNF) has been chosen as the Charity Partner for the MetroTex Charitable Trust Run for Fun.
HNF is thrilled to have been chosen for the 4rd year as a Charity Partner for the TD Bank Five Boro Bike Tour
As a little girl, Estela Lugo now 32, always knew she would do “something with art” when she grew up. “I was drawing, always drawing,” she remembers.
Arrangements are being made to allow HNF to invite families impacted by Charcot-Marie-Tooth for a weekend, in 2013, to Camp Twin Lakes.
The Hereditary Neuropathy Foundation (HNF) “Spin/Yoga for a Cure” will be held Thursday, September 27, 2012.
Team CMT – Richmond’s Monthly Group Fun Run will met at 8am, Saturday, July 7 at Winterpock Elementary School, 9000 Elementary Way Loop, Chesterfield, VA.
Almost 10 now, Erin was diagnosed Charcot-Marie-Tooth (CMT) four years ago. Over those four years there have been numerous trips to Boston for treatment and surgery.
The Hereditary Neuropathy Foundation (HNF) is thrilled to partner with B East Amgansett, NY and The Breakwater Yacht Club, Sag Harbor, New York, for our Fifth Annual Spin for the Cure.
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