CATEGORIES: Bike New York | Past Events | Team CMT Members

HNF Charity Partner: TD Five Boro Bike Tour May 4, 2014

by | Feb 9, 2013 | 0 comments

 

Valerie Tornambe, Theresa Quadrozzi, Cynthia Gahan, Allison Moore, Gabriella Gaspar, Michael Loucas, Elena Atkin, Tricia Hanley, Marguerite Loucas

HNF is thrilled to have been chosen for the 4rd year as a Charity Partner for the TD Bank Five Boro Bike Tour. This means more participants riding to increase awareness of Charcot-Marie-Tooth, and thousands more dollars raised to fund research into treatments and a cure. This year we were given 10 spots! Team CMT members will have first dibs.

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For more information contact Courtney@hnf-cure.org to be a part of the Five Boro Bike Tour to ride with the Hereditary Neuropathy Foundation, so dust off that Schwinn and meet us in the Big Apple!

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by | Jun 19, 2014 | , | 0 Comments

In spite of high foot arches and trouble with balance, Joy von Werder of Winter Springs, FL has always been a runner and cyclist. She was also eager to participate in a triathlon. “The training and racing aspects really appeal to me,” she explained. There was one huge problem though. Joy didn’t know how to swim. “So there I was, 39 years old, taking swimming lessons from the boy who gave my little kids lessons,” Joy laughs, but her voice changes quickly as she describes her first race.

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by | May 21, 2014 | | 1 Comment

Allyson O’Connor won’t let CMT get her down. She was unofficially diagnosed at the age of 10. Her Dad had the same symptoms, but at the time genetic tests were not available. Her diagnosis was based on an EMG. After having her two children, now age 8 and 6, she decided it was important to determine if she definitely had CMT.

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