Jillian’s Cure Super Hero 5K: Help Save Children With Optic Atrophy

by | Oct 17, 2015 | 0 comments

jillain 5K 2016Come join us on April 23, 2016, for Jillian’s Cure Super Hero 5K event in Columbia, SC.

Jillian’s Cure was founded by Carolyn Nava, after her daughter Jillian was diagnosed with Optic Atrophy/Optic Neuropathy: a rare inherited neuropathy with no effective treatments or cures.

Also known as autosomal dominant optic atrophy (ADOA) ­plus syndrome, ADOA is considered to be the most common hereditary optic neuropathy. At 5 years old, Jillian is rapidly losing her vision and hearing due to this rare, inherited neuropathy. 

Jillian’s Cure Super Hero 5K event is your chance to participate in building awareness and raising research dollars to help find a cure for children with optic atrophy.

Early Bird registration is open now!

Not local, but still want to join the 5K?

You can run virtually from anywhere.

Come join the conversation on Facebook!

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November 7, 2014: A Hollywood Affair

Join us November 7, 2014 at A Hollywood Affair to raise money and awareness to fund research for Autosomal Dominant Optic Atropy (ADOA).

Jillian is battling this disease, which involves vision loss, hearing loss, disturbances in the nerves used for muscle movement and sensation, and muscle weakness.
Dress like your favorite celebrity to have your moment on the Red Carpet!

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