

WHAT IS CMT

Charcot-Marie-Tooth disease (CMT) is one of the most common inherited nerve disorders.



TYPES OF CMT

Description of the most prevalent types of CMT.



PATIENT RESOURCES

Helpful patient care resources for the treatment & management of CMT.



CMT UPDATES

Read about CMT updates and the latest in CMT research. Access our archives since 2014.



CMT CONNECT

Webinars. Empower, Educate, Connect.

CMT Research

=

TRIAD

Therapeutic Research In Accelerated Discovery TRIAD = Academia + Government + Industry

=

GRIN PATIENT REGISTRY

Why should you join GRIN?
It’s pretty simple…
We need YOU!

=

PEDIATRICS & CMT

CMT starts in infancy and lays dormant in the body until one day the symptoms start to appear.

Connect with us



FDA

Providing real-world data to the FDA



CLINICAL TRIALS

Part of HNF's mission is to advance and support clinical research and trials for CMT.



PATIENT-FOCUSED RESEARCH

HNF has been conducting patient-focused research dating back to 2007.



EMERGING TECHNOLOGIES

Built to get you more shares and more followers.

GENETIC TESTING - CMT GENIE

Wish there was an easy guide for genetic testing? Now there is!



MOVEMENT IS MEDICINE™

The program offers adaptive free online classes for everyone!



FACES OF CMT

Thank you to the many faces and families who have chosen to share their stories and fundraise for their rare subtype of CMT.



INDUSTRY

Providing access to conduct Clinical Trials.



HCPs/CENTERS OF EXCELLENCE

HNF has a national network designating medical Centers of Excellence (COE) for the hereditary neuropathy patient community.



RESEARCH FUNDING

HNF advances preclinical research as quickly as possible if it aligns with our key objectives

About HNF

=

OUR STORY

Supporting patients and families with critical information to improve quality of life, and funding research that will lead to treatments and cures.

=

FOUNDATION LEADERSHIP

HNF Board of Directors, Staff and the TRIAD Council.

=

990's & ANNUAL REPORTS

We rely on your donations as we advance our mission to deliver results to our CMT family community.



Join Team CMT

Join the movement to make a difference for those living with Charcot-MarieTooth (CMT).



Ways to Give

HNF is a 501(c) 3 public charity enabling donors to support our mission safely. There are many ways to give.



Amazon Wishlist

Ultimate wishlist of CMT-friendly products on Amazon to make life with CMT easier.



CMT Shop

Donate While You Shop & Support CMT Awareness!



GRIN Registry

Join the Global Registry for Inherited Neuropathies (GRIN) and help develop drugs, gene therapies, and clinical trials for CMT and other Inherited Neuropathies! We need YOU!



Facebook Fundraiser

Create a Facebook Fundraiser to help raise funds for CMT research.
Make sure to choose, “Hereditary Neuropathy Foundation” as your non-profit.



Celebrate your birthday with a purpose

Start a CMT Birthday Fundraiser! It's a super easy and great way to spread awareness and support CMT Research. Share to your page and let others know what CMT research means to you!



Participate or Host an event

Participate in an HNF-hosted event or create your own. It’s a unique opportunity for our community to come together and celebrate and raise awareness and funds for CMT research.

CATEGORIES: CMT Update

In Memoriam

by Courtney | Aug 19, 2014 | 0 comments

The HNF family has lost two great people this summer: Franklin G. Downing Sr. (father of board member Matthew Downing) and George G. Gatta (father of board member Kathleen Zappola). We
would like to honor these two individuals as they have provided us with great leaders in our board members. It is always hard to say goodbye to loved ones but we know they are with us daily as we continue our quest to cure Charcot-Marie-Tooth. HNF thanks all those that donated in memory tosupport the TRIAD Research Program.

Learn more on this topic

Related Blog Posts

Top 10 Ways to Spread CMT Awareness

by Courtney | Jan 2, 2017 | CMT Update | 0 Comments

HNF HAS COME UP WITH TEN WAYS YOU CAN DO YOUR PART AND HELP ALL OF US SPREAD CHARCOT-MARIE-TOOTH AWARENESS:

Thank You to Everyone Involved with PLEO-CMT Trial!

by Courtney | Jan 2, 2017 | CMT Update | 2 Comments

a drug candidate has reached Phase 3 clinical trial, the critical last phase before potential FDA market approval

HNPP Study Available for HNF Members

by Courtney | Dec 19, 2016 | CMT Type - HNPP, CMT Update, Faces of CMT - HNPP Fund | 27 Comments

This study, which aims to uncover the rather unrecognized symptoms of Hereditary Neuropathy with Liability to Pressure Palsy (HNPP)

Patient-Centered Summit for CMT/HNPP: Cambridge, MA November 3, 2017

Patient-Centered Summit for CMT/HNPP: Cambridge, MA November 3, 2017

by Courtney | Nov 25, 2016 | CMT Update | 1 Comment

HNF is excited to hold the 2nd Annual Patient-Centered Summit with a focus this year on CMT/HNPP and Pain in Cambridge, MA!

10 Ways Participating In GRIN Helps Support CMT/IN Research

10 Ways Participating In GRIN Helps Support CMT/IN Research

by Courtney | Jul 14, 2016 | CMT Update, GRIN Patient Registry | 0 Comments

HNF’s Global Registry for Inherited Neuropathies (GRIN) is one of our initiatives that supports our commitment and dedication to developing treatments and discovering cures for CMT and other INs.

About The Summit Venue: 3 West Club, New York City

by Courtney | May 26, 2016 | CMT Summit, CMT Update | 0 Comments

The Hereditary Neuropathy Foundation has selected historic 3 West Club to hold the first Patient-Centered Charcot-Marie-Tooth Summit on October 6, 2016.

Summit Speaker Spotlight: Gary Barg, The Fearless Caregiver

Summit Speaker Spotlight: Gary Barg, The Fearless Caregiver

by Courtney | May 25, 2016 | CMT Summit, CMT Update | 1 Comment

Those caring for patients living with CMT are invaluable members of our community. Caregivers are on the frontlines every day, helping patients manage their daily struggles and challenges of living with CMT.

Applying for Disability with Hereditary Neuropathy or CMT

Applying for Disability with Hereditary Neuropathy or CMT

by Courtney | May 19, 2016 | CMT Update, Legal Rights and Benefits | 74 Comments

Learn how you can apply for disability with Hereditary Neuropathy or CMT.

Top Ten Ways Participating in GRIN Helps Support CMT/IN Research

Top Ten Ways Participating in GRIN Helps Support CMT/IN Research

by Courtney | May 19, 2016 | CMT Update, GRIN Patient Registry | 0 Comments

HNF’s Global Registry for Inherited Neuropathies (GRIN) is one of our initiatives that supports our commitment and dedication to developing treatments and discovering cures for CMT and other INs.

Meet Molly: A True CMT Warrior

Meet Molly: A True CMT Warrior

by Courtney | Apr 6, 2016 | Bike New York, CMT Update, Living with CMT, Team CMT Members | 2 Comments

Kassandra generously shared the story of their friendship with us: I met Molly while living abroad in Tel Aviv, Israel. She just moved there and reached out to me to write for a foodie website I was running at the time.

Join the conversation

Leave a Comment

0 Comments

Submit a Comment Cancel reply

Newsletter

Join for notifications on events, campaigns, & news