CATEGORIES: CMT Update

In Memoriam

by Courtney | Aug 19, 2014 | 0 comments

The HNF family has lost two great people this summer: Franklin G. Downing Sr. (father of board member Matthew Downing) and George G. Gatta (father of board member Kathleen Zappola). We
would like to honor these two individuals as they have provided us with great leaders in our board members. It is always hard to say goodbye to loved ones but we know they are with us daily as we continue our quest to cure Charcot-Marie-Tooth. HNF thanks all those that donated in memory tosupport the TRIAD Research Program.

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Grab Your Shoes and Spin CRANK Style NYC!

by Courtney | Aug 19, 2014 | CMT Update, Team CMT Members | 0 Comments

Dust off those spin shoes and come out to CRANK NYC (Upper East Side – 1658 Third Avenue) Saturday, September 27, 2014 from 1pm to 3pm and Spin-For-A- Cure!

September is CMT Awareness Month

by Courtney | Aug 19, 2014 | CMT Update | 4 Comments

CMT awareness month is an entire month dedicated to building awareness, raising funds and finding a cure. The Hereditary Neuropathy Foundation (HNF) has committed to spend 30 days in September hosting local and national events, launching fundraisers, and spreading the word about the effects of Charcot-Marie-Tooth disease

“Fighter Mom’s” Join Forces

by Courtney | Feb 27, 2013 | CMT Update, GRIN Patient Registry | 0 Comments

Lori Sames and her husband Matt formed Hannah’s Hope Fund (HHF) following their youngest daughter’s diagnosis of Giant Axonal Neuropathy (GAN) in 2008. GAN is the most rare, and one of the most severe, forms of Inherited Neuropathy.

WHAT IS CMT

TYPES OF CMT

PATIENT RESOURCES

CMT UPDATES

CMT CONNECT

CMT Research

TRIAD

GRIN PATIENT REGISTRY

PEDIATRICS & CMT

WHAT IS MITO

TYPES OF MITOS

MITO Faces

MITO Research

TRIAD - Mito

GRIN PATIENT REGISTRY

PEDIATRICS & MITO CMT

FDA

CLINICAL TRIALS

PATIENT-FOCUSED RESEARCH

EMERGING TECHNOLOGIES

GENETIC TESTING - CMT GENIE

MOVEMENT IS MEDICINE™

FACES OF CMT

INDUSTRY

HCPs/CENTERS OF EXCELLENCE

RESEARCH FUNDING

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OUR STORY

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990's & ANNUAL REPORTS

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In Memoriam

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Related Blog Posts

Grab Your Shoes and Spin CRANK Style NYC!

September is CMT Awareness Month

“Fighter Mom’s” Join Forces

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