Driving
CMT Research
with the
Patient’s Voice
With your help support love
nothing is impossible!
Drive Research
Drive Research
Turn your symptoms into science
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Join Team CMT
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Pledge Monthly
Start your Monthly Gift of $10 today or consider the many other ways to give!
Research CMT
Research CMT
HNF has been conducting patient-focused research dating back to 2007.
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Gift a Birthday
Celebrate your birthday with a purpose! Start a Birthday CMT Fundraiser.
Welcome To The
Hereditary Neuropathy Foundation
Our mission is to increase awareness and accurate diagnosis of Charcot-Marie-Tooth (CMT) and related inherited neuropathies, support people living with CMT and their families with critical information to improve quality of life, and fund research that will lead to treatments and cures.
What is CMT?
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About HNF
Founded in the early 2000’s, HNF developed the Therapeutic Research in Accelerated Discovery (TRIAD) as a collaborative effort with academia, government, and industry to develop treatments for CMT.
In accordance with the FDA’s patient-focused drug development guidance for enhancing the incorporation of the patient’s voice in medical product development and regulatory decision making, HNF has developed a regulatory strategy to support FDA Guidelines to engage with industry early on and assist with collecting and submitting robust and meaningful patient experience data, and other relevant information from patients and caregivers, such as identifying what is important to patients.
HNF is actively committed to increasing awareness and accurate diagnosis of CMT and providing patients and families with critical information to improve quality of life.
From Our Blog
LATEST
GRIN is Changing the Game for CMT Research
6,000+ Strong Across 72 Countries — 2025 GRIN is Changing the Game for CMT Research! We’re thrilled to announce a major milestone: Over 6,000 GRIN members from 72 countries have joined forces to advance research for Charcot-Marie-Tooth (CMT) and Inherited Neuropathies...
First Humans Dosed in New CMT Drug Trial
A New CMT Treatment Is One Step Closer Augustine Therapeutics Begins Phase I Trial of AGT‑100216 Exciting news for the CMT community! TRIAD partner, Augustine Therapeutics has officially dosed the first human participant in their Phase I clinical trial of AGT‑100216—a...
CMT Summit Patient Voices
At the 2025 CMT Summit and Retreat in Nashville, the Hereditary Neuropathy Foundation (HNF) placed patient and care partner voices front and center. Through powerful firsthand stories shared on stage and in intimate breakout sessions, attendees experienced the raw...
Meet Children’s Author C.M. Harris
C.M. Harris is an award-winning children’s author, disability advocate, and founder of Purple Diamond Press. She is the author of What If We Were All The Same!, a beloved picture book that celebrates differences and helps kids understand the importance of kindness and...
Thank You! Nashville CMT Summit + Retreat
Thank You! Nashville CMT Summit + Retreat What a weekend! From the heart of Music City to the heart of our mission, you helped make the 2025 HNF Summit + Retreat an unforgettable celebration of science, stories, and strength. Whether you joined as a patient,...
HNF Partner: CMT-SORD Clinical Trial Update
CMT-SORD Clinical Trial Update Promising Results from the INSPIRE Study on Govorestat! We’re excited to share new results from HNF TRIAD Partner, Applied Therapeutics for the INSPIRE Phase 2/3 clinical trial of Govorestat (AT-007) for CMT-SORD presented at the...
CMT Biobank: Participate today!
Are you ready to help drive real progress in CMT research? The Hereditary Neuropathy Foundation (HNF) is inviting individuals with a confirmed CMT diagnosis to participate in our CMT Biobank—a groundbreaking initiative accelerating the path to treatments and cures. By...
Join Us: James’ Scramble for a Cure
Join us for James’ Scramble for a Cure on July 25, 2025 Tijeras Creek Golf Club, Tijeras Creek, Rancho Santa Margarita, CA All proceeds will go towards CNTNAP1 research. ABOUT THE DAY Registration opens at 11 am Lunch available for golfers 11 am - 1 pm Putting Contest...
Featured
GRIN is Changing the Game for CMT Research
6,000+ Strong Across 72 Countries — 2025 GRIN is Changing the Game for CMT Research! We’re thrilled to announce a major milestone: Over 6,000 GRIN members from 72 countries have joined forces to advance research for Charcot-Marie-Tooth (CMT) and Inherited Neuropathies...
Meet Children’s Author C.M. Harris
C.M. Harris is an award-winning children’s author, disability advocate, and founder of Purple Diamond Press. She is the author of What If We Were All The Same!, a beloved picture book that celebrates differences and helps kids understand the importance of kindness and...
Thank You! Nashville CMT Summit + Retreat
Thank You! Nashville CMT Summit + Retreat What a weekend! From the heart of Music City to the heart of our mission, you helped make the 2025 HNF Summit + Retreat an unforgettable celebration of science, stories, and strength. Whether you joined as a patient,...
HNF Partner: CMT-SORD Clinical Trial Update
CMT-SORD Clinical Trial Update Promising Results from the INSPIRE Study on Govorestat! We’re excited to share new results from HNF TRIAD Partner, Applied Therapeutics for the INSPIRE Phase 2/3 clinical trial of Govorestat (AT-007) for CMT-SORD presented at the...
Featured Webinars
Webinar: Making Sense & Science of CMT Symptoms
How do we know if our symptoms are Charcot-Marie-Tooth Disease related, and how can we drive research to better answer this question?
CMT THRIVE Webinar – Cannabis & Neuropathy Webinar
Cannabis can be a safe and effective tool to reduce symptoms of neuropathy and improve patient quality of life.
Active Hands
Hear from Rob Smith, Inventor and Director of Active Hands and learn about these life-impacting products designed especially for people living with reduced hand function.
CMT-Connect Pain Webinar
New CMT-Connect Webinar Pain Series will focus on a particular type of pain, its common causes, available treatments and future treatments on the horizon.
UPCOMING EVENTS
CMT Biobank: Participate today!
Are you ready to help drive real progress in CMT research? The Hereditary Neuropathy Foundation (HNF) is inviting individuals with a confirmed CMT diagnosis to participate in our CMT Biobank—a groundbreaking initiative accelerating the path to treatments and cures. By...
Join Us: James’ Scramble for a Cure
Join us for James’ Scramble for a Cure on July 25, 2025 Tijeras Creek Golf Club, Tijeras Creek, Rancho Santa Margarita, CA All proceeds will go towards CNTNAP1 research. ABOUT THE DAY Registration opens at 11 am Lunch available for golfers 11 am - 1 pm Putting Contest...