Dear Rare Patient Warriors and Friends, Patient Worthy is having a personal essay contest for a rare patient, caregiver or support person who hopes to attend the Set Sail for …Read More »

We’re thrilled to announce a new partnership that will bring our resources in front of The Mighty’s wide-reaching readership. We will now have a growing home page on The Mighty …Read More »

The National Organization for Rare Diseases (NORD)—an independent charity that built its natural history study platform for rare diseases and is supported by a cooperative agreement by the U.S. Food …Read More »