Welcome To The
Hereditary Neuropathy Foundation
Our mission is to increase awareness and accurate diagnosis of Charcot-Marie-Tooth (CMT) and related inherited neuropathies, support patients and families living with CMT, and fund research that will lead to treatments and cures.
HNF has raised over $2,000,000 for Charcot-Marie-Tooth Research.
Latest News From HNF
Q&A with Inspire CMT Community Member Amanda Pool
Amanda Pool shares her experience with the online Inspire CMT Community.
read more
Q&A with Dakota Reilly Impact of AlterG on Charcot-Marie-Tooth
Learn how this CMT1A patient uses the AlterG treadmill to manage her CMT symptoms.
read more
Scavenger Hunt To Raise Funds For CMT 6
Join us on September 9th in Victor, NY for a Scavenger Hunt to help raise funds for CMT 6 research.
read moreAcceleron is actively enrolling Phase 2 clinical study of ACE-083 for CMT patients ~ Learn more.
Events
MightyMan Half Iron Distance
Fort Pond, Montauk, NY ~ October 1, 2017
On Sunday, October 1, 2017 HNF will participate in the MightyMan Half Iron Distance in Fort Pond, Montauk, NY as a charity partner.
HNF Patient-Centered CMT/HNPP Pain Summit
Cambridge, MA ~ Friday, November 3, 2017
On Friday, November 3, 2017, in Cambridge, MA, HNF will host its 2nd Annual Patient-Centered Summit for CMT/HNPP and the focus will be on pain.