September 25, 2014: 2nd Annual Dick Sharpe Memorial Golf Outing: We are pleased to announce the Hereditary Neuropathy Foundation's Second Annual Dick Sharpe Memorial Golf Outing - in memory of the recent passing of our dear friend, father & board member Read More...
Sunday, November 2, 2014: Grace’s Courage Crusade Brunch: We've set the date, now we need you to do the same! Don't miss this fantastic event! The atmosphere of scenic Newport, RI, the fabulous food, and the desserts! You Read More...
January 23, 2015 – Bridge/Brunch Fundraiser: Charity Card Party Brunch and Boutique
Please join us January 23, 2015 at 10:30 at the Broken Sound Country Club, Boca Raton Florida. Join Board Members Iris and Nat Adler for an Read More...
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Jul 10, 2014 – Embrace the Brace: A Mother’s Perspective on Helios: My daughter Dakota is a force to be reckoned with, a strong willed, happy, smart young lady with a wit that could knock you off your chair with laughter. She’s Read More...
May 19, 2014 – From the words of a CMT Hero: “FAITH, LOVE AND HOPE KEEPS TIMMY DIXON GOING!”
I often wonder what it’s like to be like everyone else out there. How great it would be to do things most consider Read More...
May 16, 2014 – Using Zebrafish to Search for Therapeutics for CMT2A: Research on CMT is global, and covers both laboratory and clinical studies. It is critically important to be aware of what is happening elsewhere as well as in the USA Read More...
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