Interested in driving CMT research forward? We need you!

Interested in driving CMT research forward? Watch our new 7-min GRIN Demo video explaining the steps in creating and updating your GRIN account!

Key Points:

• The account creation process is best done on a computer using Chrome, Edge, or Safari browsers.
• The first step is to go to the HNF website and choose “New to GRIN” on the GRIN registry page to access the request access form.
• After completing the request access form, you’ll receive an email from HNF to verify your account.
• The natural history study involves answering 60 CMT-related questions about how the disease affects you.
• There are also NIH-funded ClinGen surveys that researchers can use to better understand other signs and symptoms related to CMT.
• The Sharing Center allows you to create a link to share your surveys.
• The Documents section is where you can upload your genetic test results.
• The dashboard shows all your surveys, new and in-progress studies, and completed surveys, along with the time to complete them, the number of questions, and the start button.
• The General Information section lets you view and edit your basic contact information.
• The Journal is for your personal use, and the Messages section is where you’ll receive messages from inside the GRIN platform (the sender will be HNF).