Camp CMT: Great Opportunity for Children with CMT!

by | Sep 24, 2012 | 0 comments

The Hereditary Neuropathy Foundation (HNF) is excited to bring you the opportunity to make great memories next year in the summer of 2013.  Arrangements are being made to allow HNF to invite families impacted by Charcot-Marie-Tooth for a weekend, in 2013, to Camp Twin Lakes.  Through their network Camp Twin Lakes provides customized programs for children with serious illnesses, disabilities and other challenges.  All the recreational activities are fully-accessible in a medically supportive environment.  And note, although Camp Twin Lakes is located in Georgia, you do not need to be a resident of Georgia to join us. The camp locations are accessible through Hartsfield Airport in Atlanta.

We know the weekend will be a lot of fun for everyone.  We hope to be able to offer a longer stay for campers beginning in 2014.  To that end, HNF really needs just a few minutes of your time to let us know if your family would be interested in next summer’s weekend, with the thought that your child, or children, might participate in the future.  Below is a survey, it is not a commitment on your part to attend.  We realize the lack of financial information and exact date might affect any decision to attend Camp Twin Lakes.  However, we need your input in determining the structure of this program. HNF will determine financial support factors once we have a better idea of how many people want to attend.

Before logging off this page, won’t you help us by completing the questionnaire?  Please answer the following questions in an email to: with CMT Camp in subject line.  Thank you for your help in bringing this worthwhile program to our families.


Number of children with CMT in family:

Genders & Ages:

Number of siblings without CMT:

Genders & Ages:

We are interested in participating, but would need the following additional information:

For further questions do not hesitate to contact  the HNF office at 212-722-8396 or

There is enormous value in meeting other families living with CMT. Together we can make a difference! Be a part of this wonderful opportunity to learn from the experts as well as from each other.

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