CATEGORIES: Our Impact

Join Our CMT Summit Q&A Zoom

by | Jan 22, 2025 | 0 comments

Join Our CMT Summit Q&A Zoom

Have questions about HNF’s upcoming CMT Summit + Patient Retreat? We’re here to help!

Date: Wednesday, February 26, 2025

Time: 3:00 PM – 4:30 PM ET (pop in any time that is convenient for you)

Register Today

This interactive session is your chance to ask questions, learn more about the event, and connect with others in the community. Whether you’re wondering about the schedule, speakers, wearable study or how to participate, we’ve got you covered.

For more details about the summit, visit HNFSummit.givesmart.com.

We look forward to seeing you there!

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Breaking News: First Therapeutic Gene Therapy to Treat an Inherited Neuropathy is Approved for Clinical Trial!

by | Mar 6, 2015 | , , | 9 Comments

The first disease community to receive a therapeutic gene to the spinal cord for an ultra rare inherited neuropathy is Giant Axonal Neuropathy (GAN). Congratulations to Hannah’s Hope Fund (HHF), a 501(c)3 public charity, which has driven this collaborative research in less than six years. Six million dollars has been raised to date to fund pre-clinical and clinical research on this rare disease.

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