Grace’s Courage Crusade is a passionate mission of the Sidoti/Caldarone family…
To support those living with Charcot-Marie-Tooth disease, which affects Marybeth Caldarone and her daughter Grace, who has CMT2A. Our mission includes both funding cure-driven research and raising awareness of CMT worldwide. We achieve these goals through several pathways.
First, we come together each fall at our annual fundraiser in scenic Newport, Rhode Island.
Second, we elevate the public profile of CMT through our children’s book series, written by Carol Liu and Marybeth Caldarone. The series, beginning with Arlene On the Scene and now featuring a sequel, Arlene, the Rebel Queen, educates children, parents and educators about CMT through a lively and humorous story, while providing a positive role model for those growing up with CMT. Finally, through our School Outreach Program, we bring an important message about the value of embracing differences to elementary schools across the country.
We had another amazing turnout for our 9th annual Grace’s Courage Crusade fundraiser for CMT2.
All proceeds will go to the Hereditary Neuropathy Foundation to fund research for Charcot-Marie-Tooth Type 2.
Please join us for this amazing event to benefit Grace’s Courage Crusade, a passionate mission of the Sidoti/Caldarone family to support those living with Charcot-Marie-Tooth disease
Grace’s Courage Crusade, a passionate campaign of the Sidoti/Caldarone family to raise awareness and fund CMT research, held its annual “Brunch by the Beach” fundraiser in scenic Newport, RI on November 2, 2014.
This year our Chief Science Officer, Sean Ekins, will attend the event and provide an update on the exciting research HNF has funded, thanks to the generosity of Grace’s Courage Crusade!
Arlene On the Scene was recently named “Staff Pick” by Teaching Tolerance, an amazing organization dedicated to reducing prejudice, improving intergroup relations and supporting equitable school experiences for our nation’s children.
A bright, crisp day greeted supporters of Grace’s Courage Crusade as they gathered to enjoy brunch by the beach with breathtaking views at the Atlantic Beach Club in Newport, RI. Following the amazing buffet spread, the crowd got intense over a dessert auction that offered tempting sweets and goodies provided by local businesses.
Forty-six schools, eight states, 6600 students. The third year of the Hereditary Neuropathy Foundation’s School Outreach Program was our best yet! From the authors’ home state of Rhode Island, to our current home in New York, and on out to Chicago, Philadelphia, Washington, DC and Dallas, we met our goal of reaching more students, teachers and parents than ever.
Older sister Erin, who also lives with Charcot-Marie-Tooth, pitched in along with mom, Monica Hughes. With a polished powerpoint show that included pictures and videos, plus doughnuts at the end, Miah’s classmates were engaged and ready to understand!
The biggest Team CMT Kids event of the year featured a group of youth triathletes going the distance to support those who live with Charcot-Marie-Tooth disease.