Driving
CMT Research
with the
Patient’s Voice
With your help support love
nothing is impossible!
Drive Research
Drive Research
Turn your symptoms into science
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Join Team CMT
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Pledge Monthly
Start your Monthly Gift of $10 today or consider the many other ways to give!
Research CMT
Research CMT
HNF has been conducting patient-focused research dating back to 2007.
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Gift a Birthday
Celebrate your birthday with a purpose! Start a Birthday CMT Fundraiser.
Welcome To The
Hereditary Neuropathy Foundation
Our mission is to increase awareness and accurate diagnosis of Charcot-Marie-Tooth (CMT) and related inherited neuropathies, support people living with CMT and their families with critical information to improve quality of life, and fund research that will lead to treatments and cures.
What is CMT?
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About HNF
Founded in the early 2000’s, HNF developed the Therapeutic Research in Accelerated Discovery (TRIAD) as a collaborative effort with academia, government, and industry to develop treatments for CMT.
In accordance with the FDA’s patient-focused drug development guidance for enhancing the incorporation of the patient’s voice in medical product development and regulatory decision making, HNF has developed a regulatory strategy to support FDA Guidelines to engage with industry early on and assist with collecting and submitting robust and meaningful patient experience data, and other relevant information from patients and caregivers, such as identifying what is important to patients.
HNF is actively committed to increasing awareness and accurate diagnosis of CMT and providing patients and families with critical information to improve quality of life.
LATEST
A Recipe for CMT Treatments: Grateful for You This Thanksgiving
This Thanksgiving, we’re filled with gratitude for YOU. Your support, encouragement, and belief in our mission make everything we do at the Hereditary Neuropathy Foundation (HNF) possible. As we reflect on the progress we’ve made this year, it reminds us of a...
Update on NMD Pharma Clinical Trial
NMD Pharma Initiates Phase 2 Study of NMD670 in Patients with Charcot-MarieTooth Disease Type 1 and 2 NMD Pharma A/S, a clinical-stage biotech company dedicated to developing novel and improved treatments for patients living with neuromuscular diseases, announces that...
HNF’s Wearable Tech Study Delivers Strong Results for CMT Clinical Trials
HNF’s Wearable Tech Study Delivers Strong Results for CMT Clinical Trials The Hereditary Neuropathy Foundation (HNF) is breaking new ground in Charcot-Marie-Tooth (CMT) research with a pioneering study that uses wearable technology to monitor function in CMT patients....
CMT Warriors Unite: Rock, Roll, & Make a Difference in San Antonio, TX
Event Details: San Antonio, TX: December 7-8, 2024 (5K, 10K, Half Marathon, Full Marathon)
Seeking Participants for a New CMT Clinical Trial: A Chance to Help Advance Treatment
Seeking Participants for a New CMT Clinical Trial (for the US only): A Chance to Help Advance Treatment! The sponsor of the study is NMD Pharma A/S. If you’re living with Charcot-Marie-Tooth (CMT) disease, specifically CMT1 or CMT2 subtypes, you may be eligible to...
New Gene Therapy Shows Potential in Early Trial for Charcot-Marie-Tooth Disease
A recent clinical trial has shown promising results for a new treatment option for people living with Charcot-Marie-Tooth (CMT) disease. The therapy involves a special type of gene medicine that uses a plasmid (a small, circular piece of DNA) to deliver a gene that...
CMT Biobank
The CMT Biobank is now open! Are we coming to a city near you? Do you want to make a difference in CMT research? HNF is looking for patients with a confirmed CMT diagnosis to participate in the CMT Biobank. Your vital blood samples and de-identified GRIN data will be...
How Does CMT Affect You?
Join the thousands of HNF volunteers who are fueling CMT research. The more you share, the more we’ll learn. Complete your GRIN surveys today!
Featured
HNF Awards the inaugural HNF Clinical Translation Fellowship
HNF Awards the inaugural HNF Clinical Translation Fellowship in the amount of $170,000 to Kayla Cornett, PhD We are thrilled to announce the establishment of the HNF Clinical Translation Fellowship, awarded to Kayla Cornett, PhD, a distinguished postdoctoral research...
Research Opportunity: CMT-SORD
Research Opportunity: CMT-SORD I am writing to you today because there is a research opportunity you may be eligible for. When you joined HNF’s Global Registry for Inherited Neuropathies (GRIN), you agreed to be contacted regarding these opportunities. Since 2001, the...
Unstoppable Skyler Fisher: Triumphing Across Continents with CMT
In the fast-paced world of para triathlons, one name stands out among the rest: Skyler Fisher, a dynamic 19-year-old powerhouse representing Team USA.
HNF Contributes CMTRN Data to C-Path’s RDCA-DAP
HNF Contributes CMTRN Data to C-Path’s RDCA-DAP, Strengthening Research Capabilities for Inherited Neuropathies Integration of CMTRN data into RDCA-DAP promises new insights into Charcot-Marie-Tooth disease and related neuropathies, fueling advancements in treatment...
Featured Webinars
Webinar: Making Sense & Science of CMT Symptoms
How do we know if our symptoms are Charcot-Marie-Tooth Disease related, and how can we drive research to better answer this question?
CMT THRIVE Webinar – Cannabis & Neuropathy Webinar
Cannabis can be a safe and effective tool to reduce symptoms of neuropathy and improve patient quality of life.
Active Hands
Hear from Rob Smith, Inventor and Director of Active Hands and learn about these life-impacting products designed especially for people living with reduced hand function.
CMT-Connect Pain Webinar
New CMT-Connect Webinar Pain Series will focus on a particular type of pain, its common causes, available treatments and future treatments on the horizon.
UPCOMING EVENTS
CMT Warriors Unite: Rock, Roll, & Make a Difference in San Antonio, TX
Event Details: San Antonio, TX: December 7-8, 2024 (5K, 10K, Half Marathon, Full Marathon)
2024 CMT Roadshow Coming to a City Near You?
Do you want to make a difference in CMT research? HNF is looking for patients with a confirmed CMT diagnosis to participate in the CMT Biobank
Virtual Chair Yoga, Healthy Heart & Backs to the Mat
Virtual Chair Yoga, Healthy Heart & Backs to the Mat