Become a part of GRIN

Matrix by Across HealthCare In 2022, HNF re-launched its Global Registry for Inherited Neuropathies (GRIN) on the Matrix platform by Across Healthcare. The registry’s goal is to acquire, record, and analyze patient-reported data and associated genetic reports, Electronic Health Records (EHRs), and clinical notes. This important data allows HNF to better identify the burden, diagnostic journey, and prevalence of CMT that will aid TRIAD research partners. This data also supports the identification of previously unknown genotype/phenotype correlations, important comorbidities such as pain or respiratory issues, and targets our research-spending.

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