CMT awareness month is an entire month dedicated to building awareness, raising funds and finding a cure. The Hereditary Neuropathy Foundation (HNF) has committed to spend 30 days in September hosting local and national events, launching fundraisers, and spreading the word about the effects of Charcot-Marie-Tooth disease (CMT), all in an effort to help those living with this disease.
CMT has been referred to as “the biggest disease you’ve never heard of.” HNF wants to change that, and with your help we believe that we can. Approximately one in every 2,500 people (2.6 million worldwide) live with CMT. CMT is a progressive disorder that causes the nerve cells leading to the body’s extremities to slowly degenerate, resulting in the loss of normal use of the hands, arms, legs and feet. CMT does not discriminate – this disease strikes people of all ages, genders, races and ethnicities. Alarmingly, symptoms are often not diagnosed properly and unfortunately are routinely overlooked by doctors and medical professionals.
This is the time to get the word out about CMT and to increase the understanding of its impact on the lives of those living with the disease. Our goal this September is to expand our community in sharing our passion for people to understand the seriousness of CMT.
So don’t wait, get involved today!
•Text2give Un-selfie4CMT campaign
•California Pizza Kitchen Fundraiser
•Dick Sharpe Memorial Golf Event