On October 14, 2020, Winter School athletes in Wisconsin hit the Tuscobia Trail to raise much needed funding for HNF’s gene therapy program in support of Alana Kohler.
This amazing school reached out to HNF after they saw a media piece on Alana Kohler who has GDAP1 (CMT4). They were responding to the family’s quest to raise funds for HNF’s gene therapy program.
The Kohler family drove 150 miles for the event and handed out water and Alana’s home-baked goodies at two water stations along the trail. The event raised over $10,000 through a gift basket raffle and an 11-mile run/walk on the Tuscobia Trail from Winter to Radisson for a girl they didn’t know with a disease they’d never heard of.
The event gave Winter Student athletes something to look forward to and served to redirect their focus from COVID-19, distance learning, and canceled daily practices and competitions.
Thank you to Winter School’s coaches, student athletes and the Winter School community for your dedication to finding a cure for Charcot-Marie-Tooth disease and for your kindness to the Kohler Family.