CMT Centers of Excellence
The Hereditary Neuropathy Foundation (HNF) announces its national network designating medical Centers of Excellence (COE) for the hereditary neuropathy patient community.
The designated COEs demonstrate strengths in providing excellence in clinical care and research and will collaborate with HNF to expand their role as CMT/IN patient community hubs for clinical care, community engagement, research, and training/education.
HNF strongly believes CMT patient care and prognosis could be significantly improved if health care practitioners (HCPs) could demonstrate and enhance their proficiency in managing CMT patient care.
Director, HNF Center of Excellences
Florian P. Thomas MD, MA, PHD, MSC
Director, Hereditary Neuropathy Center, Hackensack University Medical Center, Founding Chair & Professor, Department of Neurology, Hackensack Meridian School of Medicine
Science and medical care are critical for helping our patient community have access to the best options for maintaining function and mobility.
There are wonderful CMT experts at our CMT Centers of Excellence, a hub for clinical care, community engagement, and innovative research. The CMT experts span resources from treating pain, offering corrective foot and hand surgical procedures, educating patients on the many options available for AFO’s (leg braces), information on genetic testing, PT, OT, and what research or clinical trials may be available to patients.
HNF has an application process with set terms for becoming a Center. We expect our partners to provide excellent patient care and to host a Patient-Focused Summit or CMT-Connect Webinar. If the site is a research Center, the opportunity to receive funding from us for pre-clinical or clinical research, including participating as a clinical trial site for our industry partners. Some of our lead sites have members that sit on the TRIAD Council or GRIN Advisory Council.
Are you a Healthcare Provider?
Enroll in our Healthcare Provider Directory!
The Healthcare Provider (HCP) Directory lists hundreds of CMT specialists and is organized by geographic region and specialty. Our goal is to offer people with hereditary neuropathies a resource where they can find medical specialists with unique expertise and familiarity in caring for people with hereditary neuropathies. Some of our providers offer virtual visits through telemedicine.
Arizona
Arkansas
Colorado
Connecticut
California
”Illinois”
Kansas
Florida
Massachusetts
Michigan
Minnesota
Missouri
New Jersey
”North
New York
Oregon
Pennsylvania
Ashutosh Kumar, MBBS, MD
Penn State Health Children’s Hospital
Appointments: 717-531-0003 Ext 282193
Texas
Austin Neuromuscular Center
3901 Medical Parkway, Ste. 300
Austin, TX 78756
Contact:
Yessar Hussain, MD
Phone: (512) 920-0140
Website: https://austinneuromuscle.com/contact/
Washington
Canada
University of Toronto
Hernan D. Gonorazky, M.D
A primary healthcare provider must provide a referral to the Neuromuscular Clinic at SickKids. Once that has been obtained an appointment can be arranged.
CME Education for Credits
View The AANEM Charcot-Marie-Tooth Continuing Education Course for a detailed look at this CMT continuing education course.
Participants will acquire skills to:
(1) Diagnose CMT based on common symptomology;
(2) Discuss work-up and surgical treatment options for the very young to adults;
(3) Identify potential therapies and bracing that may improve quality of life for those diagnosed and their care-givers.