HNF's Centers of Excellence

CMT/IN patient community hubs.

The Hereditary Neuropathy Foundation (HNF) announces its national network designating medical Centers of Excellence (COE) for the hereditary neuropathy patient community. The designated COEs demonstrate strengths in providing excellence in clinical care and research and will collaborate with HNF to expand their role as CMT/IN patient community hubs for clinical care, community engagement, research, and training/education.

Arkansas

Arkansas Children’s Hospital *Pediatric Center of Excellence
1 Children’s Way
Little Rock, AR 72202-3591

Contact
Dr. Aravindhan Veerapandiyan
Assistant Professor of Pediatric Neurology
Director Comprehensive Neuromuscular Program
Email: [email protected]
Primary Care Appointments:
501-213-1883
Specialty Care Appointments:
501-819-3520

Connecticut

Hospital for Special Care
Charles H. Kaman Neuromuscular Center
2150 Corbin Avenue
New Britain, CT 06053

Contact:
Sharon McDermott
Phone: 860-612-6305
Fax: 860-612-6304

Email: [email protected]

Kansas

University of Kansas Medical Center
Landon Center on Aging
3599 Rainbow Boulevard
Mailstop 2012
Kansas City, KS 66160

Contact:
Laura Herbelin
Phone:  913-945-9934
E-Mail: [email protected]

Massachusetts

Brigham and Women’s Hospital
Department of Neurology
75 Francis St, Tower 5th Floor
Boston, MA 02115

Contact:
Kristen Roe
Phone: 617-525-6763
E-Mail: [email protected]

North Carolina

 

Dr. Rebecca Traub

University of North Carolina
194 Finley Golf Course Road, Suite 200
Chapel Hill, NC 27517

Contact:
For clinical appointments
Phone: (984) 974-4401
Referral Fax: (984) 974-2285

Dr. Urvi Desai

Atrium Health Neurosciences Institute-Charlotte
1010 Edgehill Road North
Charlotte, NC 28207

Contact:
For clinical appointments:
Phone: (704)-446-1900
Referral Fax:
Ashley Clyburn
(704)-355-5650

California

Cedars-Sinai Medical Center

127 S. San Vicente Blvd.

Advanced Health Sciences Pavilion, A6600

Los Angeles, CA 90048

Contact:

Tara Jones

CMT Clinic line: (310-423-4268)

Email: [email protected]

 

 

Stanford Neuroscience Health Center Neuromuscular Clinic

213 Quarry Road, 1st Floor

Palo Alto, CA 94304

Contact:

Dr. Robert Fisher or Dr. John Day

Phone: 650-723-6469

 

 

UCLA Department of Neurology

300 Medical Plaza, Suite B200

Los Angeles, CA 90095

Contact:

Dr. Halabi Anasheh

Telephone: 310-794-1195 (note: request to be scheduled with Dr. Halabi)

Fax: 310-794-7491

Florida

University of Florida (UF) Health
2000 SW Archer Road
Gainesville, FL 32610

Contact:
Melissa Hines
Phone: 352-294-5000
E-Mail: [email protected]

University of Miami 
Professional Arts Center (PAC)
1150 NW 14th Street, 6th Floor
Miami, FL 33136

Contact:
Robert Hernadez
Phone: 305-243-7400
E-Mail: [email protected]

AdventHealth Neurology at Winter Park
1573 W Fairbanks, Ste 210
Winter Park, FL 32789

Contact:
Nivedita Jerath MD, MS
Phone: 407- 303-6729
E-Mail: [email protected]adventhealth.com

Michigan

University of Michigan
2205 Commonwealth Blvd
Ann Arbor MI 48105

Contact:
Keianna Banbury
Phone: 734-763-2554 for appointments
Email:  [email protected]
Website: https://www.uofmhealth.org/

Missouri

St. Louis University Medical Center
Department of Neurology
1438 South Grand Boulevard
St. Louis, MO 63104

Contact:
Research: Molly Labrier
Phone for Appointments: (314) 977-6177
E-Mail: [email protected]

MU Health Care:
Department of Neurology
1020 Hitt Street
Columbia, MO 65212

Contact:
Dr. Raghav Govindarajan
Phone: 573-882-1515
E-Mail: [email protected]

New York

Columbia University
Department of Neurology
710 West 168th Street
New York, NY  10032

Contact:
For clinical appointments
Phone: 212-305-0405
For research studies
Phone: 212-305-6035, ask for Allan Paras
Email: [email protected]

Washington

St. Luke’s Rehabilitation Institute
715 South Cowley Street, Suite 210
Spokane, WA  99202

Contact:
Ann Cooper
Phone:  509-939-8079
Email[email protected]

 

Colorado

Children’s Hospital Colorado

*Pediatric Center of Excellence

13123 E 16th Ave,

Aurora, CO 80045

 

Contact

Alison Ballard: 720-777-8723

Clinic Schedulers: 720-777-2806

Illinois
Ann and Robert H. Lurie Children’s Hospital of Chicago *Pediatric Center of Excellence
225 East Chicago Avenue
Chicago, IL 60611

 

Contact:
Dr. Vamshi Rao
Phone: Call 1-800-KIDS-DOC for an appointment. 
If there is already a diagnosis of CMT, call 312-227-4471

Minnesota

University of Minnesota Health
Neurology Clinic
14500 99th Avenue N
Maple Grove, MN 55369

For Research Studies:
Phone: 612-624-7745
E-Mail: [email protected]
For Clinic Appointments – Valerie Ferment
Phone: 763-898-1080

New Jersey

Goryeb Children’s Hospital *Pediatric Center of Excellence

55 Madison Avenue
Morristown, NJ 07960

Contact:
Jahannaz Dastgir
Phone: 973-971-5700
Email: [email protected]

 

Hackensack University Medical Center
360 Essex Street
Hackensack, NJ 07601

Contact:
Dr. Florian Thomas
Phone: 551-996-8100
Email: [email protected]hackensackmeridian.org

 

Texas

Austin Neuromuscular Center
3901 Medical Parkway, Ste. 300
Austin, TX 78756

Contact:
Yessar Hussain, MD
Phone: (512) 920-0140
Website: https://austinneuromuscle.com/contact/

 

 
 

 

If you would like to become an HNF Center of Excellence, apply below.