HNF's Centers of Excellence

CMT/IN patient community hubs.

The Hereditary Neuropathy Foundation (HNF) announces its national network designating medical Centers of Excellence (COE) for the hereditary neuropathy patient community. The designated COEs demonstrate strengths in providing excellence in clinical care and research and will collaborate with HNF to expand their role as CMT/IN patient community hubs for clinical care, community engagement, research, and training/education. 

*Acceleron Pharma has initiated a Phase 2 clinical study of ACE-083, an investigational drug, in patients with Charcot-Marie-Tooth (CMT) disease. They are currently accepting patients at the centers below highlighted in RED. For other locations accepting patients click here.

CALIFORNIA

Cedars-Sinai Medical Center
127 S. San Vicente Blvd.
Advanced Health Sciences Pavilion, A6600
Los Angeles, CA 90048

Contact:
Dana Fine
Phone: 310-423-8497
Email: Dana.Fine@cshs.org

Stanford Neuroscience Health Center
Neuromuscular Clinic
213 Quarry Road, 1st Floor
Palo Alto, CA 94304

Contact:
Jennifer Fisher
Phone: 650-723-6469
Email: jnfisher@stanford.edu

FLORIDA

University of Miami 
Professional Arts Center (PAC)
1150 NW 14th Street, 6th Floor
Miami, FL    33136

Contact:
Meri Jaime (for appointments)
Phone: 305-243-7400
E-Mail: MJaime@med.miami.edu

MICHIGAN

University of Michigan
2205 Commonwealth Blvd.
Ann Arbor MI 48105

Contact:
Jen Thomas
Phone: 734-763-2554 for appointments
Email: jennifkt@med.umich.edu
Website: https://umichmda.wordpress.com/

NEW JERSEY

Hackensack University Medical Center*
360 Essex Street
Hackensack, NJ 07601

Contact
Annerys Santos
Phone: 551-996-8100
Email:Annerys.Santos@HackensackMeridian.org

CONNECTICUT

Hospital for Special Care
Charles H. Kaman Neuromuscular Center
2150 Corbin Avenue
New Britain, CT 06053

Contact:
Boguslawa Koczon-Jaremko
Phone: 860-612-6356
E-Mail: Bkoczon-Jaremko@hfsc.org

KANSAS

University of Kansas Medical Center*
Landon Center on Aging
3599 Rainbow Boulevard
Mailstop 2012
Kansas City, KS 66160

Contact:
Nicole Jenci
Phone:  913-945-9934
E-Mail: njenci@kumc.edu

MINNESOTA

University of Minnesota Health
Department of Neurology
420 Delaware Street SE, MMC 295
Minneapolis, MN 55455

Contact:
Valerie Ferment
Phone: 612-301-1535
E-Mail: ferm0016@umn.edu

NEW YORK

Columbia University
Department of Neurology
710 West 168th Street
New York, NY  10032

Contact:
For clinical appointments
Phone: 212-305-0405
For research studies
Phone: 212-305-6035, ask for Allan Paras
Email: ap3476@cumc.columbia.edu

FLORIDA

University of Florida (UF) Health
2004 Mowry Road
PO Box 100332
Gainesville, FL 32610

Contact:
Tracie Kurtz, RN, CCRP
Phone: 352-273-8517
E-Mail: tlkurtz@ufl.edu

 

MASSACHUSETTS

Brigham and Women’s Hospital
Department of Neurology
75 Francis St, Tower 5th Floor
Boston, MA 02115

Contact:
Kristen Roe
Phone: 617-525-6763
E-Mail: kroe@partners.org

MISSOURI

St. Louis University Medical Center
Department of Neurology
1438 South Grand Boulevard
St. Louis, MO 63104

Contact:
Susan Eller
Phone: 314-977-4867
E-Mail: ellersc@slu.edu

WASHINGTON

St. Luke’s Rehabilitation Institute
715 South Cowley Street, Suite 210
Spokane, WA  99202

Contact:
Ann Cooper
Phone:  509-939-8079
EmailCooperA@st-lukes.org