Estela was diagnosed with CMT at 4 years-old. Her younger sister followed 3 years later. From that point forward, their parents became heavily involved in advocacy and fundraising for CMT & Muscular Dystrophy throughout Long Island, NY.
“I was lucky enough to be thrown into the non-profit world at a very young age. I was raised in a community that was incredibly passionate and dedicated to improving and saving lives. Joining the HNF has been a ‘Full-circle Moment’ for me; I’m back where it all began.”
Estela’s professional background in design, marketing, and creative direction brings a new perspective to connecting CMT patients to wellness and health. “Health is a multi-faceted approach for CMT. We’re constantly looking to improve quality of life in multiple ways”.
She is an avid user and personal advocate for the AlterG anti-gravity treadmill (running for the first time in her adult life) and MOTUS – Made for Movement program.
Email Estela at [email protected].