Charcot Marie Tooth HNF
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LCMT
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WHAT IS CMT

Charcot-Marie-Tooth disease (CMT) is one of the most common inherited nerve disorders.

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TYPES OF CMT

Description of the most prevalent types of CMT.
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PATIENT RESOURCES

Helpful patient care resources for the treatment & management of CMT.
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CMT UPDATES

Read about CMT updates and the latest in CMT research. Access our archives since 2014.

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CMT CONNECT

Webinars. Empower, Educate, Connect.

CMT Research

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TRIAD

Therapeutic Research In Accelerated Discovery TRIAD = Academia + Government + Industry
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GRIN PATIENT REGISTRY

Why should you join GRIN?
It’s pretty simple…
We need YOU!

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PEDIATRICS & CMT

CMT starts in infancy and lays dormant in the body until one day the symptoms start to appear.
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LMITO
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WHAT IS MITO

Mitochondria is the powerhouse of our cells.

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TYPES OF MITOS

Mitochondrial is linked to some CMT subtypes.

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MITO Faces

Meet the families who are fundraising for Mito research.

MITO Research

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TRIAD - Mito

Therapeutic Research In Accelerated Discovery TRIAD = Academia + Government + Industry

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GRIN PATIENT REGISTRY

Why should you join GRIN?
It’s pretty simple…
We need YOU!

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PEDIATRICS & MITO CMT

1 in 4,000 children are born with mitochondrial disorders.

LOur Impact
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FDA

Providing real-world data to the FDA

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CLINICAL TRIALS

Part of HNF's mission is to advance and support clinical research and trials for CMT.

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PATIENT-FOCUSED RESEARCH

HNF has been conducting patient-focused research dating back to 2007.

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EMERGING TECHNOLOGIES

Built to get you more shares and more followers.

GENETIC TESTING - CMT GENIE

Wish there was an easy guide for genetic testing? Now there is!

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MOVEMENT IS MEDICINE™

The program offers adaptive free online classes for everyone!

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FACES OF CMT

Thank you to the many faces and families who have chosen to share their stories and fundraise for their rare subtype of CMT.

LPartner with Us
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INDUSTRY

Providing access to conduct Clinical Trials.

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HCPs/CENTERS OF EXCELLENCE

HNF has a ​national network designating medical Centers of Excellence (COE) for the hereditary neuropathy patient community.

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RESEARCH FUNDING

HNF advances preclinical research as quickly as possible if it aligns with our key objectives
CONTACT US

About HNF

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OUR STORY

Supporting patients and families with critical information to improve quality of life, and funding research that will lead to treatments and cures.
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FOUNDATION LEADERSHIP

HNF Board of Directors, Staff and the TRIAD Council.

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990's & ANNUAL REPORTS

We rely on your donations as we advance our mission to deliver results to our CMT family community.

LYou can help!
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Join Team CMT

Join the movement to make a difference for those living with Charcot-MarieTooth (CMT).

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Ways to Give

HNF is a 501(c) 3 public charity enabling donors to support our mission safely. There are many ways to give.

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Amazon Wishlist

Ultimate wishlist of CMT-friendly products on Amazon to make life with CMT easier.

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CMT Shop

Donate While You Shop & Support CMT Awareness!

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GRIN Registry

Join the Global Registry for Inherited Neuropathies (GRIN) and help develop drugs, gene therapies, and clinical trials for CMT and other Inherited Neuropathies! We need YOU!

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Facebook Fundraiser

Create a Facebook Fundraiser to help raise funds for CMT research.
Make sure to choose, “Hereditary Neuropathy Foundation” as your non-profit.

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Celebrate your birthday with a purpose

Start a CMT Birthday Fundraiser! It's a super easy and great way to spread awareness and support CMT Research. Share to your page and let others know what CMT research means to you!

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Participate or Host an event

Participate in an HNF-hosted event or create your own. It’s a unique opportunity for our community to come together and celebrate and raise awareness and funds for CMT research.

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M

Contact Courtney at:

 [email protected]

for any questions, or call us at

919-824-7260

Mail Donations to:

Hereditary Neuropathy
Foundation

P.O. Box 1922
Midlothian, VA 23113

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212-860-5405


917-591-2758

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