Run With Purpose. Give With Heart.

by | Dec 28, 2022 | 0 comments

Run With Purpose. Give With Heart. Support HNF’s 2026 TCS New York City Marathon Team

Every step tells a story. This November, a courageous group of runners will take to the streets of New York City as part of the TCS New York City Marathon — running not just for themselves, but for the millions of people living with Charcot-Marie-Tooth disease (CMT) and other hereditary neuropathies.

Why We Run

CMT is the most common inherited neurological disorder, affecting approximately 1 in 2,500 people worldwide. It causes progressive muscle weakness, loss of sensation, and mobility challenges that impact everyday life. Despite its prevalence, CMT remains largely underfunded and underrecognized and that is exactly why we run.

Your Support Makes a Difference

Every dollar raised through our marathon team goes directly toward funding critical CMT research, advancing new treatments, and providing vital resources to patients and families navigating life with hereditary neuropathy. Together, we are getting closer to a cure.

How You Can Help

Make a donation — No amount is too small. Every contribution brings us one step closer to a world free of CMT

 

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When Chris Wodke received her acceptance letter to run in the 2012 Boston Marathon Mobility Impaired Division, she was overwhelmed. “I wanted to cry and shout at the same time. I never thought I would be running Boston. It is an honor and I am humbled. It is the achievement,” she explains, “of a dream that seemed out of reach.”

Di Billick Runs 10k for Team CMT

Di also did something special for Team CMT. “I took my body to the absolute limit yesterday, Sunday, April 15th, in honor of Chris Wodke’s Boston Marathon run which took place the next day. I walked (no jogging or running) in one direction and had my husband pick me up when I couldn’t go any further.”

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