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Terms of Use

This Web site – HNF-cure.org – is an educational and informational service provided by The Hereditary Neuropathy Foundation (in a co-operative agreement with the Center for Disease Control (CDC)), under the condition that users agree to adhere by the terms and conditions delivered in this User Agreement, which may be changed from time to time. Your use of this site serves as your agreement and acceptance of all of the terms and conditions as stated below.

Declaration of Use

By using this site, you agree that the information on this Web site is provided “as is” for general information only. The intent of HNF-cure.org is to not proffer medical advice or suggestions and users should not rely on the information posted on this Web site as an alternative for diagnosis or advice from qualified health care providers, who would be more aware of individual medical conditions and requirements. HNF-cure.org advises all CMT patients, potential patients, and care giver’s associated with patients that any care and treatment decisions related to Charcot-Marie-Tooth disease or other medical conditions be made in consultation with a patient’s physician or other qualified health care providers who are aware of the individuals specific health situation.

HNF-cure.org makes no declarations regarding the information, services, products or message on this Web site and specifically disclaims any other warranties, including but not limited to implied or express warranties of merchantability or fitness for any type of usage, application or purpose. HNF-cure.org makes no warranties of any kind regarding the operation of this Web site, including but not limited to any warranty of accuracy, completeness, or reliability, for a particular purpose, or any warranty that these pages, or the server that makes them available, are free of viruses, worms, Trojan horses, other harmful elements or other code that might have contaminating or destructive properties and such warranties are expressly disclaimed.

Outbound Links

HNF-cure.org will make no representation, warranty or endorsement, express or implied, regarding any of the information, services, products or messages on all other Web sites which may be visited through a link, banner, or any other manner of transfer from this Web site. Specifically, these links are supplied for ease of reference only and are not an implied endorsement by HNF-cure.org of the business, organization or individual operating the Web site or a warranty or endorsement of any kind regarding the Web site or the information, services, products or messages posted on or available from such Web site.

Proprietary Content, Copyrights and Trademarks

Unless indicated, any and all information contained on this Web site, including text, graphics, logos, button icons, images, audio and video clips, is copyrighted by and exclusive to HNF-cure.org. The content displayed on any page of this Web site is meant for personal and noncommercial uses that will not do harm to the reputation of HNF-cure.org, under the provision that the user does not remove any trademarks, copyright and any other notice contained in such content. All logo’s and taglines found on this site are the property of HNF-cure.org and may not be used or reproduced without its prior written consent.


You agree that you will hold harmless The Hereditary Neuropathy Foundation and its officers, directors, agents, employees, and volunteers from all claims arising out of or related to your access or use of, or your inability to access or use, this Web site or the information, services, products or messages contained in this Web site or other Web sites to which it is linked, including but not limited to claims that you have found something you have heard, viewed or downloaded from this Web site or another Web site to which it is linked to be obscene, offensive, defamatory, or infringing upon your intellectual property rights. In no event will The Hereditary Neuropathy Foundation or HNF-cure.org or the contributors of content to this Web site be liable to you or anyone else for any decision made or action taken by you in reliance on such information or for any consequential, special or similar damages, even if advised of the possibility of such damages. YOU HEREBY RELEASE AND FOREVER WAIVE ANY AND ALL CLAIMS YOU MAY HAVE AGAINST THE HEREDITARY NEUROPATHY FOUNDATION, ITS OFFICERS, DIRECTORS, AGENTS, EMPLOYEES, AND VOLUNTEERS FOR LOSSES OR DAMAGES YOU SUSTAIN IN CONNECTION WITH YOUR USE OF THIS WEB SITE.

Governing Law

This Web site (excluding linked sites) is controlled by The Hereditary Neuropathy Foundation, which is located in the State of New York, United States of America. As this site can be accessed from all 50 states, as well as from other countries around the globe. As each of these places has laws that may differ from those of New York, by accessing this Web site both you and The Hereditary Neuropathy Foundation, agree that the statutes and laws of the State of New York, without regard to conflicts of laws principles thereof, will apply to all matters arising from or relating to use of this Web site. You and The Hereditary Neuropathy Foundation, also agree and hereby submit to the exclusive personal jurisdiction and venue of New York County, New York and the United States District Court for the Southern District of New York with respect to such matters. The Hereditary Neuropathy Foundation,makes no representation that materials on the Web site are appropriate or available for use in other locations, and accessing them from territories where their contents are illegal is prohibited. Those who choose to access this Web site from other locations do so on their own initiative and are responsible for compliance with local laws.

Linking From Other Web sites

The Hereditary Neuropathy Foundation, may grant the owner of a Web site permission to use a hyperlink to this Web site from its Web site, provided: (a) any such link must clearly be marked “The Hereditary Neuropathy Foundation,” (b) the appearance, position and other aspects of either the link or the host Web site may not be such as to damage or dilute the goodwill associated with The Hereditary Neuropathy Foundation’s name and trademarks; (c) the appearance, position and other aspects of either the link or the host Web site may not create the false appearance that any other entity is associated with or sponsored by The Hereditary Neuropathy Foundation; and (d) the link, when activated by a user, must display this Web site full-screen and not with a “frame” on the linked Web site. The owner of any Web site with a hyperlink to this Web site agrees to the foregoing terms and agrees to delete any such link upon notice from The Hereditary Neuropathy Foundation, that such permission has been revoked, which notice may be given at any time and for any reason.

The Hereditary Neuropathy Foundation is not responsible for the information or materials contained on Web sites linking to this Web site. Links to this Web site are provided for convenience of reference only and are not intended as an endorsement by The Hereditary Neuropathy Foundation of the organization or individual operating the host Web site or a warranty of any type regarding the host Web site or the information on the host Web site.