…testimonies, the empathy and love shared throughout the room came through.” – Allison Moore, CEO/Founder HNF FEEDBACK FROM THE FDA INCLUDED: “What I was impressed with from the beginning is…
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Moving Away From Perfectionism
…help you learn and mature. Condition your mind to recognize this kind of criticism and accept that it is normal to receive feedback from others. Learn to Be Kind to…
Battersby Lab Donor Story: Fighter Moms Donate to Vital Research into Mitochondrial Diseases
…In 2014, Lindsey’s son Jaxson was diagnosed with a terminal mitochondrial disease known as Leigh Syndrome. He is non-verbal and requires feeding through a gastrostomy button. Despite this, Jaxson has…
HNF TRIAD Partner: A note to the CMT community from NMD Pharma
…clinical sites, and patients fell short. We sincerely apologize for those experiences. We are taking these learnings seriously, and feedback from participants, caregivers, and the broader community is already shaping…
A Successful Movement is Medicine™ Summit
…groundbreaking event! The wonderful feedback we have received makes all of the hard work and planning well worth it. HERE IS WHAT SOME OF OUR ATTENDEES HAD TO SAY: “Watching…
Canine Companions for Independence (CCI) has provided trained assistance dogs for children and adults with disabilities since 1975
…However, you must be responsible for the care, feeding, housing and medical needs of the assistance dog for the length of its service to you. Also, you must pay for…
PATIENT’S VIEW OF HNF MOVEMENT IS MEDICINE SUMMIT
…23 years ago when she was 20 years old. She lives in Sacramento, CA with her husband and 2 cats. Here is her feedback: I had the absolute honor and…
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