When presented with the chance to educate the American Association of Neuromuscular & Electrodiagnostic Medicine (AANEM) members on Patient-Focused Research and how Healthcare Providers can be part of the research continuum on therapy development their Annual Conference on October 10-13 in Washington, D.C., the team at HNF jumped at the chance!

The AANEM is a professional membership based non-profit with a network of over 4,000 physician and nonphysician members worldwide with a mission to improve the quality of patient care for neuromuscular diseases. This annual meeting attracts more than 900+ neurologists, PMR physicians, neuromuscular specialists, and other healthcare professionals, and we are honored to be holding a 90-minute educational session just on CMT. Our agenda will include, but is not limited to, insight on the importance of Patient Reported Outcomes in CMT patient care, therapy development, and the use of new technology for an international observational real-world data study to explore the impact of CMT on patients in the real-world setting.

Highlights from the “Voice of the Patient” weekend overview will be included as well as the importance of early and accurate diagnosis. Leaders in genetic testing will educate members on new and affordable testing options for our CMT patient community. Additionally, tips from leading CMT Experts will be shared and dive deeper into the patient’s condition through the use of CMT-validated clinical testing scales to enhance treatment options and patients’ functionality.

This may improve patient care management and expand to optimal targeted treatments. HNF resources will enhance the neuromuscular clinicians ability to have access to other HCPs and allow for qualified referral resources for their patients. This integrated approach will provide more comprehensive care for the CMT patient. We will also highlight the necessary steps for transitioning pediatric patients to adult neurologists and other healthcare providers.

HNF, in collaboration with AANEM, has developed a CMT Assessment Test and CME accredited course to access and manage this multi-faceted approach to care for patients. Stay-tuned as HNF and AANEM announce the exciting new 2019 initiative!

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