HNF to host an educational CMT symposium at AANEM’s Annual Conference October 10-13th in Washington, D.C.
The Annual RARE Patient Advocacy Summit, hosted by Global Genes, is in its seventh year and will take place on October 3-4 at the Hotel Irvine in Irvine, California.
CMT&Me is an observational, non-interventional study, sponsored by Pharnext, to collect Real-World Evidence (RWE) from people living with CMT.
On May 19, HNF participated in the Rare Patient Advocacy Symposium in partnership with Penn Medicine Orphan Disease Center and Global Genes.
When we learned of Rob Smith’s story, and how his line of gripping aids came to be, we knew it was one worth sharing.
We interviewed Bernadette to ask her to share her tips and tricks for traveling with a disability.
Are all of your CMT symptoms really CMT symptoms?
Meet Lainie Ishbia who will be speaking during the Voice of the Patient Weekend about behavioral health & CMT.
An intimate 75-year journey of love, loss and refusal to surrender to a disabling disease.
Disability and financial expert, James Traylor, provided a very informative presentation on the basics of navigating disability benefits and services.
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