Using Medical Cannabis for Managing Pain in Charcot-Marie-Tooth Disease

by | Feb 23, 2023 | 1 comment

Using Medical Cannabis for Managing Pain in Charcot-Marie-Tooth Disease – Patient Reported Outcomes

Data regarding medical cannabis use for pain relief in CMT from HNF’s CMT Patient Registry, GRIN, was analyzed and published by a team lead by Brian J. Piper, PhD and  Gregory T. Carter, MD. The results revealed the vast majority of those surveyed experienced significant relief, providing evidence that controlled trials are needed to evaluate this pain treatment in CMT further.

Objective: Chronic pain is a major problem for patients with Charcot-Marie-Tooth (CMT) disease. This exploratory study examined patient-reported efficacy of medical cannabis for pain management in this population.

 

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Why are we asking you to join our registry? It’s simple. Without you, researchers won’t have the essential patient information to develop the drugs, gene therapy, and clinical trials for Charcot-Marie-Tooth and other inherited neuropathies.
This is why the Hereditary Neuropathy Foundation (HNF) created the Global Registry for Inherited Neuropathies (GRIN). The registry collects the historical, clinical, and genetic information on patients diagnosed with the various forms of inherited neuropathies to help advance therapy development for these debilitating disorders. We understand there may be some hesitation joining our registry. To help mitigate any concerns, we’ve have the answers to your most common questions.

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1 Comment

  1. Linda

    I have been taking CBD medically for about 1/2 year. I have CMT1A, but find no relief from the CBD for pain.But what the CBD what the CBD does is help with nightly restless legs and cramping. Since starting CBD I have experienced no restless legs and very few cramps. The cramps have not totally disappeared but the frequency and severity is much decreased.

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