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H.E.L.P Fund

Help Elliot Live Proud & Support CMT 2A research.

The H.E.L.P. Fund was founded by Iris Adler.

Iris started this fund after her grandson Elliot (Help Elliot Live Proud) was diagnosed with CMT2A. Each year Iris orchestrates a letter writing campaign and lives by the motto, “Every dollar counts and every dollar adds up!”

She has raised over $500,000 for the Therapeutic Research in Accelerated Discovery Program (TRIAD) to support research for one of the most common forms of CMT2A.

In addition to the letter campaign, Iris hosts a Card Party Brunch which includes canasta and mahjong each year in the winter at Broken Sound Country Club in Boca Raton, Florida. She invites her H.E.L.P. supporters, many friends and members of CMT community for an incredible afternoon of card playing, lots of good food and drinks and an exquisite boutique and silent auction.

 

A Letter to All Grandparents

Calling all Grandparents (and Parents)!

It’s hard to believe that 11 years ago my grandson, Elliot, was diagnosed with

Charcot-Marie-Tooth (CMT) disease. After the age of seven, Elliot could not play soccer, ride his bike, or hike in the woods. Instead, he’s endured several surgeries and is struggling today to cope with his deteriorating condition. Elliot wears braces that extend to his knees, and the loss of agility makes it nearly impossible for him to enjoy activities that most young boys and men take for granted. After meeting Allison Moore, HNF’s CEO/ Founder, I partnered with the Hereditary Neuropathy Foundation and created a fund called H.E.L.P (Help Elliot Live Proud) specifically for research of Charcot-Marie-Tooth Type 2A. Since then, I’ve worked hard to raise money to cure and treat this little known disease. It has been a successful endeavor, but we still need to do more for research and to bring drugs to market! Allison has devoted her life to our little-known disease, which causes such distress. She has done an amazing job with new discoveries, information and making the world more aware of CMT. We are so close, really close, to eliminating and perhaps reversing the effects of Elliot’s CMT2A. What we discover for Elliot’s type will benefit all the variants of CMT. So if everyone donates (even a small amount), we will be on the road to raising enough to make this a reality. 

You may choose to give specifically for CMT2A to the H.E.L.P. Fund. 

Whatever you decide, please GIVE! 

With gratitude, Iris Adler