On October 23, 2015 the Victor New York Blue Devils Football boosters and coaching staff dedicated their first playoff game from their undefeated season to team manager Zach Houliares.
Zach has CMT6. In lieu of 50/50, Victor cheerleaders passed football helmets throughout the first half of the game raising $777.07!
100% of all the proceeds collected went to HNF’s Team Zach to fund research for CMT6!
Thank you to the Victor community for all your support!
When Debi’s son Zach was first diagnosed with CMT Type 6 in 2014, after 14 years of doctors trying to figure it out, she couldn’t believe there was a disease out there that no one has ever heard of.
On Thursday April 21, 2016, over 160 Zach supporters gathered for the 1st Casino Night to benefit CMT6!
The Hereditary Neuropathy Foundation is proud to be included among leading rare disease groups, as we collectively aim to fill the research gaps to better understand how these rare diseases progress over time.
Optic neuropathy is one of the symptoms of a less common form of Charcot-Marie-Tooth disease known as CMT6.
On Saturday July 25, 2015, Debi and Tom Houliares hosted the first annual Chrome Diva’s Motorcycle Scavenger Hunt in Webster, New York to raise awareness and funds for CMT Type 6.
To raise awareness and fund research for CMT6 in Webster, New York!
Throughout my life many different people have impacted my views on certain things, whether it be how I speak, how I dress, what I eat or even who I’m friends with. I now consider my viewpoint on life much more mature and sophisticated than it was 10 years ago or even 5 years ago. I think more logically than ever before and I am much wiser now because of my mistakes and because of my success. Recently in my life I met another person who greatly impacted my life.
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