Select Page

Grace’s Courage Crusade Last Bash

On July 21, 2019 at the Charlestown Rathskeller Tavern in Charlestown, RI, CMT 2A supporters came together one last time to support the Caldarone/Sidoti families to fund research for CMT2A. The event was an afternoon of fun for all. The buffet lunch was fantastic, topped off by an ice cream bar that kept everyone energized for the exciting cornhole tournament. Local businesses and supporters donated baskets and individual prizes, which kept participants on the edge of their seats for the raffle that closed out the evening. We thank everyone who attended. We raised more than $16,000 for CMT2A research! 

“HNF is grateful for the support of the Caladrone & Sidoti families as they help fund research for CMT2A.” –Courtney Hollett, Executive Director, HNF

James Cure Raises Over $72,000

On Friday, July 26, the McCarthy’s hosted our first golf fundraiser for our son James and other children who have CNTnap1, James’ Scramble For a Cure, at Tijeras Creek Golf Club in Rancho Santa Margarita, CA. One hundred golfers came out in support of the family, despite the heat and humidity! Golfers came ready to play, but were first served lunch by a local pizza restaurant, Selma’s, which served up pizza and beer to all who attended. 

After the golf round, an additional 100 guests arrived for the dinner festivities, which included a silent and live auction. Guests were immediately drawn to our helicopter golf ball drop raffle, which was fun for all! A helicopter dropped almost 700 golf balls that were sold for a chance at prize money. We all watched on the patio as the golf balls came flying towards the hole and couldn’t wait to find out who the winner was! The first ball to go in to the hole was determined the winner which belonged to a local charitable group called Generation Give. They are truly incredible, and elected to give back their winnings to the Hereditary Neuropathy Foundation! Thank you, Generation Give. We appreciate your support and generosity. 

The night was finished off with a tasty dinner, a silent auction with over 70 items, ranging from wine tastings at a winery to signed sports memorabilia, and also a live auction. A great time was had by all of the guests, and we couldn’t be happier with the results of our first event and the support our family received. It’s amazing how much love and generosity our family felt that night and we are in awe of our community. Thank you to the HNF team who was extremely supportive and helped make the event such a success! With the help of HNF and our event planning team, Twenty156, we are confident that we made our goals that we set for fundraising and are looking forward to finding out more about future treatment options for our son. Thank you to all of our sponsors, Art Store Fronts, Redwood West, AMA Consulting Engineers, hole sponsors and guests for their support, we couldn’t have had such a successful first tournament without you. Thanks, Kyle and Lindsey

An Evening for Charity Take Two 

On Saturday, April 6th, HNF hosted its annual Evening for Charity event at CoolMess in Roslyn, New York. The night was filled with food, drinks, music, auction items and casino tables. Guests mingled and enjoyed dining and dancing, while admiring and bidding on numerous silent auction items. Krystyna J, said,

“It was a special night for a special cause. The gathering of people had such fun gambling, mingling and eating good food knowing that they were helping to find a cure for CMT.” 

Thanks to all who joined us, this special evening raised over $25,000 for HNF’s programs! We were thrilled to see so many people with CMT (old friends and new ones), family members, and friends coming out to support HNF. We are grateful for their generosity.

A special “thank-you” goes out to the Loucas’, Dellis,’ and Cyprus’ family, owners of CoolMess. Marguerite Loucas, restaurateur, is a childhood friend of HNF CEO Allison Moore and a founding board member of HNF. Marguerite noted, “It was an honor and a privilege to host this great event at CoolMess. Allison and the team at HNF are doing amazing work to help find a cure for CMT disease. ˮ

It’s not too late to donate: https://curecmt.givesmart.com