At HNF, we understand that finding a doctor or healthcare provider that “gets you” and your CMT health can be challenging.
That’s why we think that when you do find a “Doc that Rocks”, it’s something worth sharing!
HNF wants to recognize outstanding Doctors and Health Care Providers with a “Docs that Rock” spotlight page for all to see!
So what makes a Doc Rock?
- They recognize your CMT symptoms and facilitate a fast and accurate diagnosis
- They listen to your needs and address your concerns regarding symptoms and available procedures/treatments
- If they can’t answer a question, they refer you someone who can
- They take the time to reference the neurotoxic drug card before prescribing medications
- They stay updated with the latest CMT research and communicates new findings to you
- They’re happy to learn more about CMT from you and they participate in CMT advocacy
- They follow-up on visits and procedures
- They show they genuinely care about your well-being
If you have an individual that you would like to nominate, please fill out the form below for others to see your nominee.
Make sure to check back often to view all of our “Docs that Rock”!
Who can I nominate? Any kind of practitioner who contributes to your wellness, but here are some suggestions:
- Acupuncturist
- Family Practitioner
- Gastroenterologist
- Neurologist
- OB/GYN
- Orthopedic Surgeon
- Orthopedist
- Orthotist
- Pediatrician
- Physical Therapist
- Podiatrist
- Psychologist
- Pulmonologist
- Yoga Instructor
Jessica Klain ~ Physical Therapy
“She cares! And she’s supportive of VEDA. She is encouraging and helps me learn new exercises and techniques that help me to cope.”
Jessica Klain ~ Physical Therapy
1917 Abbott Road Suite 200, Anchorage, Alaska
Phone: 319-356-2957
Website: http://www.aptak.com
Nominated by: Linda Witthoeft
David Feldman ~ Orthopedics
” Dr. Feldman is so supportive of his patients. He knows exactly what you need and when you need it. Our family has never once received an incorrect diagnosis and whatever he recommends is sure to have a positive impact. My husband and my daughter are blessed to receive treatment from Dr. Feldman and he is so dedicated to his patients. He has two offices, one in New York which he visits every month, and one in Florida where he performs most of his surgeries. He is an amazing man and should be fully recognized for his abilities and wonderful character. If you are in Florida or New York, visit him.”
David Feldman ~ Orthopedics
Paley Institute ~ Kimmel Building, 901 45th St, West Palm Beach, FL 33407
Phone: 561-844-5255
Website: https://paleyinstitute.org/
Nominated by: Brooke Warren
Nivedita Jerath ~ Neuromuscular Disorders
“Dr. Jerath, Nive to her patients, is a wonderful Neurologist who recently moved to Winter Park from the University of Florida. She specializes in CMT, but has a strong background in other Neuromuscular and Hereditary Neuropathies. She has training and a strong background with some of the most prominent CMT specialists/facilities in the country. After almost 15 years of misdiagnosis by other Neurologists (Tarsil Tunnel, CIDP, and even Parkinson’s disease) Nive diagnosed me with CMT on my first visit. This was later confirmed by a DNA request which she had submitted. Since then, she was able to diagnose other family members, including my sister, and her daughter. They travel all the way from Idaho to Florida to see her. She also does presentations at CMT Support groups across Central Florida. Since the first visit, she has closely monitored my progression, and become a friend as she treats all patients as if they were a member of her family. “
Nivedita Jerath ~ Neuromuscular Disorders
1573 W Fairbanks Ave. Suite 210, Winter Park FL
Phone: 407-303-6729
Website: https://www.adventhealth.com/find-doctor/doctor/nivedita-jerath-md-1427219724
Nominated by: Thomas Tough
Laurie Gutmann ~ Neuromuscular Disease Specialist
“Dr. Gutmann has been a godsend. When I have an appointment with her she makes me feel like I’m her only patient. She explains in a way that I understand and she takes time to answer all my questions. I hate my disease, but love Dr. Gutmann.”
Laurie Gutmann ~ Neuromuscular Disease Specialist
University of Iowa Hospital, 200 Hawkins Drive, Iowa City, Iowa
Phone: 319-356-2957
Website: http://www.uihealthcare.com
Nominated by: Diane McCall
“Dr. Gutmann shows outstanding care for the thousands of patients she treats. I thank her very much for her care and assistance in living through CMT.”
Nominated by: Gregory Hodges-Tinner
John T. Cambell ~ Foot & Ankle Reconstruction
John T. Cambell ~ Foot & Ankle Reconstruction
301 St Paul Place, Baltimore, Maryland 21202
Phone: 410-659-2800
Nominated by: Lissette MiroQuesada
Reza Seyedsadjadi ~ Neurology & Neuromuscular
Reza Seyedsadjadi ~ Neurology & Neuromuscular
Neurology Associates
165 Cambridge Street
Suite 820
Boston, MA 02114-2783
617-726-3642
Fax: 617-726-2019
Neurology Associates
15 Parkman Street
Boston, MA 02114-3117
617-724-3914
Fax: 617-726-5346
Website:https://www.massgeneral.org/doctors/19997/reza-seyedsadjadi
Nominated by: Stephanie Duphily
Raghav Govindarajan ~ Neuromuscular
“Dr. G was kind, caring and spent time with me and my family and explained CMT. For the first time I felt like I was being heard.”
Raghav Govindarajan ~ Neuromuscular
1020 Hitt Street, Columbia, Missouri
Phone: 573-882-1515
Website: https://www.muhealth.org/conditions-treatments/neurosciences/neurology
Nominated by: Linda Tucker
Dannet Dillon ~ Neurologist
“She is the only doctor who understood my condition, Charcot Marie Tooth-a neurological disorder, and prescribed treatment that allowed me to remain mobile.”
Nominee Phone: 601-200-2000
Nominee Website: http://StDom.com
Nominee Name: Dannet Dillon
Nominee Address: St Dominic Hospital, Jackson MS
Doctor Specialty: Neurologist
Nominated by: Julie Upton
Wayne Berberian ~ Foot & Ankle Orthopedic Surgeon
“Dr. Wayne Berberian is among the rare physicians who have mastered both a caring patient-centered approach and a level of surgical skill that is so advanced; it can be viewed as true artistry. He was recommended to us through a family friend and throughout our daughters four surgeries had exceeded our expectations on many levels. Dakota is my daughter and she has Charcot Marie Tooth Disease – CMT 1A.
Since her diagnosis at age eleven, we have worked tirelessly to find treatments that could slow the progression and provide her with the most comfortable, pain-free life possible. Just before Dakota’s nineteenth birthday, we began our search for a physician who could tell us if Dakota was a candidate for surgery. My pre-requisites consisted of finding a surgeon with both a stellar reputation and experience/knowledge of CMT. Individuals living with CMT understand how difficult this can be.
Happily, we found Dr. Berberian and in addition to his skills and experience, his kind, considerate demeanor was a fantastic bonus! Dakota, like many living with moderate to severe forms of CMT can be helped with surgery. Surgeries such as tendon transfers and osteotomies can increase strength and mobility. Dakota’s case required four surgeries – two for each foot. Each foot consisted of ten procedures broken down to two surgeries of five procedures each. The procedures Dr. Berberian performed were focused on correcting Dakota’s: forefoot deformity, cavus high arch, ankle laxity, and tendon relocation. In addition to twelve hospital affiliations, Dr. Berberian is one of a number of top physicians who own and operate Vanguard Surgical Center in Maywood NJ. Vanguard offers exceptional care.
Beyond the top quality surgical care, the experience of the patient and family members is enhanced by an innovative team approach that includes extraordinary anethesiologists, nurses and support staff. The level of care that Vanguard provides to patients should be a model for hospitals and surgical centers to aspire to. As our family approached Dakota’s first surgery, we prepared for a difficult year.
Her recovery has (of course) been challenging but the support from Dr. Berberian and his team has made the last five months significantly easier. Selecting the right surgeon is critical. For us, that surgeon is Dr. Wayne Berberian. I have conveyed to Dakota in the moments when she is struggling with the painful recovery, that she is changing her path in life, and remind her how brave she is to endure this long process.
Her outlook is positive and she cannot wait to begin college this fall with a brand new pair of feet! Dakota is taking charge of her CMT and Dr. Berberian has given her to ability to take the ‘first step’ into her future!”
Wayne Berberian ~ Foot & Ankle Orthopedic Surgeon
113 W. Essex Street, Maywood, NJ
Phone: 201-880-6790
Nominated by: Kerin Reilly
Christina Panetta ~ Physical Therapist
“Christina has experience working with CMT patients and is very attentive and passionate about helping others gain strength and mobility!”
Christina Panetta ~ Physical Therapist
3385 Veterans Memorial Highway, Suite I, Ronkonkoma, NY
Phone: 631-676-3111
Nominated by: Estela Lugo
Larry Wrabetz ~ Neurologist
“He is the best, very kind man and spent time with me and answered all my questions.”
Larry Wrabetz ~ Neurologist
Buffalo, NY
Phone: 716-881-8913
Website: http://medicine.buffalo.edu/faculty/profile.html?ubit=lwrabetz
Nominated by: Jennifer Gold
David Scher ~ Children’s Orthopedics
“I’m happy to nominate Dr. David Scher at the Hospital for Special Surgery. I have three children with CMT that Dr. Scher has been evaluating and treating for about 8 years now, so we’ve gotten to know Dr. Scher pretty well. Dr. Scher is an exceptionally skilled surgeon who’s years of experience alone, and record treating patients with CMT, is enough to have him at or near the top of the “Docs That Rock!” list. However, it’s how Dr. Scher works with families affected by CMT that I think set him apart and above the rest. Even as a CMT patient myself, who was diagnosed as a child and has undergone a number of corrective surgeries, determining if and when my kids needed surgery to treat their CMT was a difficult decision (to say the least). My wife and I consulted a LOT of reputable doctors, but were put off by quick diagnoses, calls for immediate surgical intervention and some doctor’s inability to relate to our kids. Then we found Dr. Scher. Our kids immediately warmed to Dr. Scher, who takes his time evaluating children and speaks to them directly, respectfully, and in simple terms. This was great, but it’s what Dr. Scher did during our first appointment that really blew us away. He asked me to take off MY shoes so he could see how MY CMT has progressed – asking about the surgical procedures I’ve had and how my progression mirrored that of my father. He was the first and only surgeon to ask anything about the progression of CMT amongst other family members. Dr. Scher recognizes how important family history can be in diagnosing children with a progressive disease, putting an effective treatment plan in place and preparing the family for what lies ahead (i.e. based on my own CMT journey). With this valuable information, Dr. Scher was better able to diagnose our children and speak to us about surgical options and timing – giving us the tools and information we needed as parents to feel confident we were making the best surgical decisions for our children. Dr. Scher knows CMT. He knows how to correct the terrible damage it causes to young bodies. However, it’s his foresight, focus on progression and outcomes and interest in getting a true 360 degree view of the patient (and their family) that makes him unique, and certainly qualifies him as a “Doc that Rocks!”
David Scher ~ Children’s Orthopedics
535 East 70th Street 5th floor (Hospital for Special Surgery) New York, NY
Phone: 212-606-1253
Nominated by: Matt Downing
Bashar Katirji ~ Neuromuscular Disorders
“Head of department and teacher at Case University. Knows CMT completely.”
Nominee Name: Dr Bashar Katirji
Nominee Address: University Hospitals
Nominee City: Cleveland
Nominee State: Ohio
Doctor Specialty: Neuromuscular Disorders
Nominated by: John Kuwik
James Auberle ~ Neurologist
“He has been my CMT doctor at the MDA Clinic for over 20 years and I just love this man.”
James Auberle ~ Neurologist
Address: 4235 Secor Rd, Toledo, OH 43623
Nominated by: Sue Ford
Roger Marzano CPO ~ Orthotist
“Has knowledge of CMT and really cares about getting his clients into the correct bracing for the best daily life.”
Roger Marzano CPO ~ Orthotist
Address: 303 West Exchange St, Akron OH
Nominated by: Elizabeth Long
Terry Heiman-Patterson ~ Neurologist
“Dr. Patterson is the first doctor that treated me as a person. She treated all my symptoms, not just her area of specialty. I had reached the point with things going wrong with my body that I started to think I was going crazy. She is very thorough.”
Terry Heiman-Patterson ~ Neurologist
Good Shepherd Rehab. hospital 5th street , Allentown PA
Nominated by: Linda Houseknecht
Sara Suttle, DPM ~ Podiatry
“First doctor to recognize my CMT and has repeatedly corrected issues with my feet as well as prescribing proactive therapies.”
Nominee Name: Sara Suttle, DPM
Nominee Address: 2425 SH-121 S
Nominee City: Bedford
Nominee State: TX
Doctor Specialty: Podiatry
Nominee Website: http://txortho.net
Nominated by: VIctoria Shoemaker
Stephen Merena ~ Podiatrist
“I’ve been going to doctors for CMT check ins for 30+ years. No one ever told me that something could be done to help with points of pain, curled toes that were ulcerating on top from rubbing against the shoes I had. I broke my foot and found this SAINT. He set me on a surgical journey to straighten my toes (8), and then when I asked if it was possible to feel more stable in my ankles, he hooked me up with another SAINT who also helped with surgeries involving my ankles. I am now in braces and can walk FAST with no stumbling. My life is so much different for the better because of his intervention and help. I’ll be forever grateful to these people for making my life so much more enjoyable.”
Stephen Merena ~ Podiatrist
192 Tilley Dr, South Burlington, VT
Nominated by: Laura Frey
Josh Benditt ~ Pulmonary Specialist
“Dr. Benditt is always willing to listen and follows through with his commitments.”
Josh Benditt ~ Pulmonary Specialist
1959 NE Pacific Street, Box 356166, Seattle WA
Phone: 206-598-4615
Nominated by: Joy Aldrich
Katrina Bernardo ~ Neurology
“She has a good understanding of CMT and HNPP symptoms, shows empathy and concern for patients, and follows up with steps to help. In my case, a referral for a surgery.”
Katrina Bernardo ~ Neurology
Neurology Clinic at UWMC, 1959 NE Pacific St., 8th Floor Seattle WA
Phone: 206-598-7688
Website: https://www.linkedin.com/in/katrina-bernardo-010b2794/
Nominated by: Tim Teebken
Thomas Mattio ~ Neurologist
“Dr. Mattio is so compassionate and knows exactly how to describe how it feels to have CMT. He got my disability claim to go through on the first try.”
Thomas Mattio ~ Neurologist
1305 W American Drive, Neenah, WI
Website: https://neurosciencegroup.com/thomas-g-mattio/
Phone: 920-725-9373
Nominated by: Corinna Feldkamp