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Why Attend Our Summit

Success depends on working together for a united purpose.

Patients, health care providers, and industry stakeholders can all benefit from attending the HNF Patient-Centered CMT/HNPP Pain Summit.

Uniting everyone in the CMT/HNPP community will guide research to be more patient centered, leading to lifestyle guidelines and treatments for those living with CMT/HNPP.

Patient/Caregiver:

As a patient attending the Summit, you’ll be able to participate in panel discussions with clinicians, and voice your unique needs and priorities in regards to CMT/HNPP pain and treatments.

Medical Provider:

As a Medical Provider, you’ll have the opportunity to work with your colleagues to identify patient-centered measurement tools to improve your clinical practice. You’ll also have the chance to hear the voice of the patient community regarding their priorities in regards to CMT/HNPP and pain.

Industry Stakeholder:

As an industry stakeholder, you’ll have the opportunity to meet with patients, caregivers clinicians, and government to discuss the utilization of outcome measures for your pipeline therapies and clinical trial designs.

Whether you are a patient, caregiver, medical provider, or industry stakeholder, all of us are accountable for treating pain. Success depends on working together for a united purpose. This Summit is a pivotal event in the CMT/HNPP community, where you can actively participate and truly make a difference.