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Thank you for your interest in the “Voice of the Patient Weekend”


Registration Process

Participation for both Friday and Saturday will require that you register for EACH meeting as follows:

Day 1: Friday, September 28th, 2018: Externally-led Patient-Focused Drug Development Meeting

There is NO fee for attending the PFDD Meeting on Friday. However, donations would be greatly appreciated. You can make a donation in the registration form under “Make a Donation”.

PFDD Meeting

Day 2: Saturday, September 29th, 2018: Patient-Centered Charcot-Marie-Tooth Behavioral Health Summit

There is a charge to attend the Summit on Saturday, which includes lunch, a snack and dynamic day that will have a lasting and significant impact.

CMT Summit

Questions? Email [email protected]