CATEGORIES: CMT-Connect | Legal Rights and Benefits | Living with CMT | Webinars - Legal Rights and Benefits

CMT & Finances

by Courtney | Apr 11, 2018 | 0 comments

Disability and financial expert, James Traylor, provided a very informative presentation on the basics of navigating disability benefits and services. Strategies on planning for home-care services, Social Security, Disability Benefits, wills, trusts and college were covered along with many other areas and attendee questions. HNF also announced its brand new State Resource Page with contact information for all state offices and programs.

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CMT-Connect: January 12, 2017 HNF Takes CMT-Connect On-Line!

by Courtney | Dec 5, 2016 | CMT-Connect | 0 Comments

HNF is excited to announce our first CMT-Connect Workshop webinar on January 12, 2017 from 7:00-9:00pm.

Rick’s RV Road Trip to Spread Awareness for Charcot-Marie-Tooth

by Courtney | Nov 22, 2016 | Living with CMT | 0 Comments

On December 1, 2016, Richard Cole (Rick) will be starting life on the road in an RV–and his road-trip will help spread awareness for Charcot-Marie-Tooth (CMT).

Q&A with CMTRV’er Richard Cole

by Courtney | Nov 8, 2016 | Living with CMT | 11 Comments

RVing blog Q&A

Headaches and Charcot-Marie-Tooth

by Courtney | Jun 1, 2016 | Living with CMT | 13 Comments

One topic that has been addressed is headaches and CMT. Some CMT patients have reported tension headaches from off-balance gait, scoliosis, and neck & spine arthritis.

How To Stay Sun Safe Year Round

by Courtney | May 26, 2016 | Living with CMT | 0 Comments

The cumulative damage caused by exposure to the sun’s harmful ultraviolet rays (UV) can lead to premature skin aging, damage the eyes and surrounding skin, and raise your risk of skin cancer.

Applying for Disability with Hereditary Neuropathy or CMT

by Courtney | May 19, 2016 | CMT Update, Legal Rights and Benefits | 76 Comments

Learn how you can apply for disability with Hereditary Neuropathy or CMT.

Radio interview with Jenny Decker

by Courtney | May 9, 2016 | Living with CMT | 0 Comments

Radio interview from last week with Jenny Decker about how she is kayaking around the Big Island to raise awareness and funds for a Charcot-Marie-Tooth.

Cholesterol And Your Health

by Courtney | Apr 13, 2016 | Living with CMT, Nutrition | 2 Comments

About one in every eight American adults have high levels of total cholesterol. Does Charcot-Marie-Tooth contribute to high cholesterol.

Meet Molly: A True CMT Warrior

by Courtney | Apr 6, 2016 | Bike New York, CMT Update, Living with CMT, Team CMT Members | 2 Comments

Kassandra generously shared the story of their friendship with us: I met Molly while living abroad in Tel Aviv, Israel. She just moved there and reached out to me to write for a foodie website I was running at the time.

Symptoms & Charcot-Marie-Tooth Disease

by Courtney | Jan 7, 2016 | Living with CMT | 1 Comment

Kuddos to our Inspire member HMBSusan! She initiated this important conversation in our Inspire Support Community. When HNF partnered with the Inspire Community, our mission was to encourage conversations just like this one.

WHAT IS CMT

TYPES OF CMT

PATIENT RESOURCES

CMT UPDATES

CMT CONNECT

CMT Research

TRIAD

GRIN PATIENT REGISTRY

PEDIATRICS & CMT

WHAT IS MITO

TYPES OF MITOS

MITO Faces

MITO Research

TRIAD - Mito

GRIN PATIENT REGISTRY

PEDIATRICS & MITO CMT

FDA

CLINICAL TRIALS

PATIENT-FOCUSED RESEARCH

EMERGING TECHNOLOGIES

GENETIC TESTING - CMT GENIE

MOVEMENT IS MEDICINE™

FACES OF CMT

INDUSTRY

HCPs/CENTERS OF EXCELLENCE

RESEARCH FUNDING

About HNF

OUR STORY

FOUNDATION LEADERSHIP

990's & ANNUAL REPORTS

Join Team CMT

Ways to Give

Amazon Wishlist

CMT Shop

GRIN Registry

Facebook Fundraiser

Celebrate your birthday with a purpose

Participate or Host an event

CMT & Finances

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