Headaches and Charcot-Marie-Tooth
One topic that has been addressed is headaches and CMT. Some CMT patients have reported tension headaches from off-balance gait, scoliosis, and neck & spine arthritis.
How To Stay Sun Safe Year Round
Summer is here and we’re ready to get outside and enjoy the sunshine! But not the burn. While many of us are anxious to get “a little color” this summer, that little bit of color can mean big problems for your skin. Health Risks Of Sun Exposure The cumulative damage...
Lung function and breathing issues with Charcot-Marie-Tooth
HNF wants to help our Inspire members get answers to questions related to Charcot-Marie-Tooth. One topic that has been addressed is lung function and breathing issues with Charcot-Marie-Tooth. Some CMT patients have reported phrenic nerve impairment. The phrenic nerve...
Accepting Myself for Who I Am
Growing up, I always knew I was different than my friends. I couldn’t run fast, tripped often (the scars on my knees are a reminder), was lousy at any sports-related activity, and was generally weak and uncoordinated. My friends accepted me as I was and didn’t really...
Greensboro Survey Study for Genetic Counseling and Genetic Testing
The goal of this study was to explore the perceptions and utilization of genetic counseling and testing by people with Charcot-Marie-Tooth (CMT). It’s important to understand what people with CMT think about genetic services and what factors may be supporting or...